Good for you!! Like you I usually get a good response with steroids (Prednisone and Dexamethasone).
I like doing a very slow taper though. I have found that this helps my ITP to go into remission. So even though I have been on the 100s I stay on 80mg for about a month, then 70mg for about 2 weeks and then a week on each dose after. It is really a very slow taper but it has worked for me :laugh:
If I taper fast, my platelets crash. My hema knows this because the past 3 episodes I have had, I put my cbc results in a spreadsheet along with the dose of prednisone I was on at each time.
I also found that tapering very slowly has also minimize the side effects for me. Tapering fast gives me bone pain and bad tremors and really bad brain fog.
Hope it works out for you as well
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