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Experience with muscle recovery post pred??

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14 years 10 months ago #10218 by SteveC
Experience with muscle recovery post pred?? was created by SteveC
My hemo and GP both say it'll take time - rather general but I'd like to know from general experiences. I started with 100mg/day and tapered 5mg/week. Due to pneumonia and hospitalization I was using pred for 19 weeks. My thighs and shoulders are noticeably week but I have to realize I've only been off pred for about 4 weeks.

Any timelines to share?
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C
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14 years 10 months ago #10222 by eklein
Replied by eklein on topic Re: Experience with muscle recovery post pred??
Hi Steve,
I had very bad muscle pain and weakness as I tapered and for several months after. I would say by 4 months of no pred I was back to normal. It was scary though. And I remember for example sitting on my bus on my way to work thinking about how I would have to stand up soon and how that would hurt and be very difficult and hoping I could do it ok.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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14 years 9 months ago #11178 by CrystalBall
Replied by CrystalBall on topic Re: Experience with muscle recovery post pred??
I have been on prednisone for almost 3 years...the last 9 months hovering between 5mg and 1mg. My thighs are still weak and have been diagnosed with prednisone myopothy. The Rheum I saw said it takes as long as you were on prednisone for it to go away- if it every does. He has a woman that was on HDP for something else and is in leg braces to this day. It saves lives but leaves a mark too.
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