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new to itp

  • Topic Author
15 years 3 months ago #6597 by
new to itp was created by
My 10yr old DS was dx with ITP on May 6th. His platelet count was 1000 at the time. I'm not new to blood diseases so I understood all of the ramifications of that. We tried IVIG, against our better judgment, twice and it didn't work either time. We tried prednisone for 4 days and he bled like a stuck pig. We didn't check to see until after we tried it that bleeding is one of the known side effects. So we are 2 1/2 months out on a watch and wait. He's been 0-2000 for just over two weeks. We use a lot of natural stuff so his cell integrity is good and he has little to no petichaie. Everything I've read online says it can take 4-6 months to heal from this. Everyone I'm reading about here has had it for years. I'm just wondering, do you know anyone who has gotten through this????? Our son has had immune suppression since his MMR shot at 14 months. He has a TON of food allergies that we know contributed to this (also caused by shots). We are slowly getting his immune system into check. I wonder, will this go away? Right now, he does live somewhat in a bubble because he is so low. Around 10k we let him walk around more and not be down much. I guess I'm just wanting to hear of anyone's child his age that actually got over this thing.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 3 months ago #6605 by Sandi
Replied by Sandi on topic Re: new to itp
Patti:

Just about everyone gets through it even if they have to live with it for a very long time. Some people have remissions that last weeks, some months, some years and some forever. You can't predict who will have remission and who won't. Most children have acute cases lasting a few months to a year; that must be what you read.
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15 years 3 months ago #6619 by alisonp
Replied by alisonp on topic Re:new to itp
Trouble is that most of the kids/adults who get better stop worrying about ITP and therefore don't post here! If its any comfort, my son still has ITP. but he is loads better than he was - used to hang around under 10K for the first 6 months, now usually around 30K but sometimes gets as high as 100K. He has a very normal life. Incidentally, I think I would let your son walk around at 1K, just ban running?

Ali
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15 years 3 months ago #6620 by n3ha
Replied by n3ha on topic Re:new to itp
Ali...

Yeah u r right..we dont have here people who have cum out of ITP to share their experiences.
Wish if we cud have some X-ITP patient sharing their experiences!!
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15 years 2 months ago #7057 by pawee
Replied by pawee on topic Re:new to itp
Hello!

I was diagnosed at 2-3 yrs old, was treated for a few months and my ITP went into remission for 22 years. After it came back, I have had a couple of short episodes of extremely low platelets but thankfully, have responded to steroids. I am currently treatment free and have normal platelet counts. I do get my counts monitored every 6 months.

So, yes some of us who have had ITP as children are still around :laugh:
14 years 10 months ago #10490 by
Replied by on topic Re: new to itp
Immunizations caused his food allergies?
  • Topic Author
14 years 10 months ago #10498 by
Replied by on topic Re: new to itp
Melinda wrote:

Immunizations caused his food allergies?


They were the catalyst that got the ball rolling. His immune system was badly badly damaged by the shots. That lead to leaky gut, which led to his food allergies. Had we avoided the shots, his gut would not have been damaged (at least not by them. none of us has a crystal ball).
14 years 10 months ago #10507 by
Replied by on topic Re:new to itp
The Symptoms of Vaccinosis:

An acute vaccine reaction may include fever, convulsions and other serious complaints in the form of an immediate crisis. A mild acute reaction may only cause a mild fever, fussiness, or drowsiness, but after months or years the vaccine miasm may still produce more severe symptoms. Some vaccine reactions may be more insidious in nature and not show symptoms for a long time. In most cases, these illnesses will be blamed on other causes or be considered idiopathic. The chronic effects of modern immunization are producing three syndromes associated with brain damage, Post Encephalitic Syndrome (PES), Post Vaccinal Encephalitis (PVE), and Minimal Brain Damage (MBD). Harris Coulter documented the Post Encephalitic Syndrome (PES). It has been said that PVE has become the most common cause of encephalitis in the USA and other industrialized countries. MBD is closely associated with ADHD, the Attention Deficit Hyperactivity Disorder. Hyperactive children are 10 times more likely to end up in reform schools or to become felons in their later lives. They are more likely to start smoking, drinking and abusing drugs at an early age than other children. All three of these syndromes have been linked to a tremendous increase in autism, dyslexia, hyperactivity and learning disabilities since the introduction of the mandatory vaccination programs.

Vaccinosis produces four major sets of symptoms. These are autism, dyslexia, hyperactivity and neurological disorders, although they have also been associated with allergies and other hypersensitivities. The signs and symptoms may include:

Autism and autism-like symptoms such as unresponsiveness to human contact, avoids direct eye contact, prefers peripheral vision; avoid proximity of people; chewing motions and grinding of teeth; confusion of the senses like auditory and visual disturbances; mutism; obsessive need to keep uniformity of environmental changes, passive states, quietness and undemanding if not disturbed but aggravated by interruption, which may cause anxiety and rage; repetitive acts and ritualistic behavior; retarded cognitive development, especially language, dysphasic speech; rocking motions; banging of the head; childhood schizophrenia;

Dyslexia and dyslexia-like symptoms like children with normal intelligence that seem to have learning disabilities; confusion of orientation of letters and numbers; difficulty telling right from left; feeling different than others, difficulty in understanding linear logic but good with seeing the overall picture.

Hyperactivity and hyperactive-like symptoms like impulsiveness, suddenly does one thing and then another; inability to concentrate on one thing with short span of attention; irritability where the child dislikes being picked up and often stiffens and pushes away; learning disabilities; disordered motor coordination; restlessness of an extreme nature, can’t keep still, always in motion, restless leg syndrome, wringing of the hands; willful and disobedient.

Neurological disorders like EEG abnormalities; Gullain-Barre syndrome (GBS); epilepsy; eyes disorders; poor visual coordination; speech impediments; hearing impediments; violent behavior; infantile spasms; learning disabilities; mental retardation; brain damage; motor impairments; seizures; tics; tremors; spasms; loss of motor control; paralysis; multiple sclerosis (MS); transverse myelitis; demylinating neuropathy; idiopathic brain and nervous diseases, etc.

Reactions to specific immunizations include the following:

DPT: Skin reactions; fever; vomiting; diarrhea; cough; runny nose; ear infection; Sudden Infant Death Syndrome (SIDS) high pitched screaming, persistent crying; excessive sleepiness; collapse; shock-like episodes; brain inflammation; seizures; convulsions, epilepsy; infantile spasms; loss of muscle control; blood disorders, thrombocytopenia, hemolytic anemia; diabetes; hypoglycemia, etc.

Pertussis vaccine:
Brain damage; breathing problems; collapse; convulsions; inconsolable bouts of crying; diarrhea; encephalopathy; grand mal epilepsy; high fevers; pain; high pitched screaming (cri encephalique); seizures; shocks; Sudden Infant Deaths Syndrome (SIDS); sleepiness; projectile vomiting; coughing, respiratory complaints, etc.

Tetanus: reoccurring abscess; anaphylactic shock; loss of consciousness; demylinating neuropathy; inner ear nerve damage; fever; etc.

Measles vaccine; aseptic meningitis; ataxia; learning disabilities; mental retardation; seizures; multiple sclerosis, Reye’s syndrome, Gullain-Barre syndrome (GBS); blood clotting disorders; juvenile onset diabetes; Cohn’s disease; ulcerative colitis.

Mumps vaccine: Bruising; encephalitis; itching; rashes; seizures of a febrile nature; unilateral nervous deafness; swollen glands, etc.

Rubella vaccine: Arthritis; anthralgia; polyneuritis; numbness; pain; paralysis, etc.

MMR: Fatigue, sore throat, cough, runny nose, headache, dizziness, fear, rash, nausea, vomiting, diarrhea; sore lymph nodes; anaphylaxis; convulsions; encephalopathy; otitis media; conjunctivitis; nerve deafness; thrombocytopenia; purpura; optic neuritis; retinitis, arthritis; Gullain-Barre (GBS); subacute sclerosing panencephalitis. Symptoms of measles, mumps and rubella vaccines combined.

Varicellla vaccine (chickenpox): cellulitis; transverse myleitis; Guillian-Barre syndrome (GBS); herpes zoster. Documented cases of transmission of vaccine virus from child to household contacts, including a pregnant woman, etc.

Polio vaccine: fever; headache; neurological complications; pain in the joints; paralysis, of lungs, of one or more limbs, sore throat; stiffness, of back, of neck; vomiting; weakness of muscles; Werdig-Hoffman disease; SV40 infection (Salk vaccine was contaminated with SV40 between 1955-1963); polio-like symptoms; etc.

Hepatitis B: Up to 17% report weakness, headache, arthritis and fever more than 100F. Sudden Infant Death Syndrome (SIDS); Guillian-Barre (GBS); demyelization including transverse myelitis, optic neuritis, multiple sclerosis (MS); chronic arthritis; immune system dysfunction, etc.

It has been noticed by homœopaths that vaccinations may lead to changes of personality, sleep patterns, eating patterns, bowel patterns and other alterations of natural cycles. Each vaccine has acute symptoms, latent symptoms and chronic symptoms. The acute symptoms are those that are mostly recorded by the orthodox school. They do not look for or wish to acknowledge the fact that immunization may produce latent states that create chronic organic pathology over the long term. When such states appear they view the pathology as a new independent disease, and do not see the connection between the distant cause (vaccination) and the recent events (new diseases). Each vaccine has the potential to produce an insidious syndrome of symptoms somewhat similar to the diseases from which they are made. For this reason, the homœopath must study each vaccine and the target disease for a deeper understanding of the symptoms and possible remedies.


April
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14 years 10 months ago #10515 by eklein
Replied by eklein on topic Re:new to itp
Please cite a source when you post information as if it was a fact. Let us judge for ourselves. Just because someone typed it somewhere, like 'the internet' doesn't make it a fact. Maybe this is from the onion or wikipedia. Actually, I'll cite the source:
www.simillimum.com/education/little-library/case-management/pedh/article.php This is a homeopathic online education website. So that can help the reader judge whether it is worthwhile information or not.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K