I thought I'd write a quick note. I remember when I first discovered that I had ITP, desperately searching this forum for answers. Most of what I found were scary, gloomy posts. I think there are a ton of people out there doing just fine. They don't post here because they are moving on with their lives.
I am on my 4th week of no treatment. Went into the hospital with a count of just 5K in April. Did the prednisone thing, tapered off and today my count was at 215K.
Throughout the entire experience, despite the stress it caused, I made sure to keep doing the things I love: running, exercising, etc. I just want to encourage everyone to not allow this to rule your life. It doesn't have to.
Try not to obsess over ITP. I certainly did. But soon I decided to just get back into my routine and I think that's the best thing I could have done.
I run a lot. I ran a half marathon last week and ran it 4 minutes faster than what I ran it in 2002, when I was just 25. While I was on prednisone, I was out training and getting stronger. I am now stronger than I was 8 years ago, when I thought I was in my prime!
So don't fall to complacency that ITP is going to ruin your life. It's all what you decide to do about it.
Just wanted to post this. I don't visit the forum much anymore, but I remembered how scared I was at first and was dying to hear a story of good news. So I hope I can provide that.
My ITP can certainly come back to haunt me. I'll deal with it just like the first time.
Stay strong! I know it's frustrating!
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