Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Im new to this

More
6 years 5 months ago #66529 by Rh
Im new to this was created by Rh
Hi, I have never participated in a discussion forum before so hope im doing this right. I was diagnosed two years ago but I have IPAH and that has been my main focus. I looked around in frequently asked questions but there was one I've been curious about, how do people hide the bruises? I've got them all over my arms, legs, neck and chest. It short sleeve season and I look like iv been in a fight. Also I seem to get more bloody noses (that last days) after eating anything with garlic, grapes and alcohol. Do these affect others too? Ok so a couple questions. Thank you
  • Hal9000
  • Offline
  • Give me all your platelets and nobody gets hurt
More
6 years 5 months ago - 6 years 5 months ago #66532 by Hal9000
Replied by Hal9000 on topic Im new to this
Rh, what I figured out was that easy bruising is brought about by very slight pressure from a hard object (eg metal, wood) on one's arm/leg/etc. So I avoided even slight pressure to solve the issue. With higher counts, one would normally experience pain (an ouchie) for a bruise to occur. Not the case with easy bruising. Light force alone can do it. But everyone is different. Perhaps you are experiencing something more on the lines of spontaneous bruising. I dunno. You might find daily vitamin C will improve the dissipation of bruises a small bit.

For the garlic, grapes and alcohol. I never identified anything that had a material impact on easy bruising/symptoms. But once again, your mileage may be different.
ITP Types and Treatments by HAL
  • Lman
  • Offline
  • We cannot change the cards we are dealt, just how we play the hand.
More
6 years 5 months ago #66560 by Lman
Replied by Lman on topic Im new to this
Garlic thins the blood . You can search internet for that . I once took garlic in my food , I found blood in my stool and admitted to hospital and led to platelet transfusion (count=1 :| )
More
6 years 5 months ago #66564 by CindyL
Replied by CindyL on topic Im new to this
Everyone is different. Even when I was low in counts, the only time I didn't eat something was if I didn't like it. Like grapes. We use garlic a lot and I have (had) no issues.
More
6 years 5 months ago #66568 by MelA
Replied by MelA on topic Im new to this
I love garlic and onions and have not stopped using them when cooking. And about 6 months ago I started drinking white grape juice - and I do eat grapes of all colors when they are in season and good. I don't think I've had any problems with these - as Cindy said, we are all different.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
More
6 years 5 months ago #66606 by LGM2
Replied by LGM2 on topic Im new to this
My husband was just diagnosed with ITP two days ago. He started prednisone yesterday. We are still trying to wrap our heads around this. He had a sinus infection that persisted and they did routine bloodwork and found platelet of 19,000. I’m thankful that we’ve found this group. There’s so much to learn and I’m pretty sure I will eventually stop crying, pull the boot straps up and take this all in. We are starting with some diet changes to help boost his platelets and immune system. I am relieved to know this is something that we can live with and finding you all gives us both hope.
6 years 5 months ago #66608 by
Replied by on topic Im new to this
A warm welcome to you and your husband. It is shocking and worrisome at first, but hopefully your husband has or will have a wonderful hematologist who will help make ITP gradually fade into the background of life. You don't have to 'pull the boot straps up.' You can simply be with him and yourself and take time to accept, adjust, learn...
(You may want to start a new thread)
More
6 years 5 months ago #66609 by LGM2
Replied by LGM2 on topic Im new to this
Thank you for the welcome. His regular doctor had him in a hematologists office the next day and he’s been started on prednisone, ultrasound on his abdomen next week just to be sure nothing was missed in the physical exam. His doctors have been amazingly supportive so far. You are right it’s going to take some time to adjust and certainly it will be an ongoing education. We are already looking at diet changes, stress reducing and remembering there is joy in life. He’s been my heart for 38 years, facing life together. We are going to do everything we can to see many more years together. Thank you again for being there and for the welcome.
6 years 4 months ago #66648 by
Replied by on topic Im new to this
That's great he has such supportive and responsive doctors. Joy is so important. It doesn't matter who one is or the circumstances, so am happy to hear you will both be laughing and smiling more.
More
6 years 3 months ago #66952 by Rh
Replied by Rh on topic Im new to this
Im in the hospital my platelets crashed to 7 my iron to 12. So got iron, platlets, IV med and steroids im up to 16 talking of doing a bone biopsy as soon as my platelets are over 30.
More
6 years 3 months ago #66954 by sillyman
Replied by sillyman on topic Im new to this

Rh wrote: Im in the hospital my platelets crashed to 7 my iron to 12. So got iron, platlets, IV med and steroids im up to 16 talking of doing a bone biopsy as soon as my platelets are over 30.

How about hemoglobin, wbc and rbc?
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use