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ITP and working/employment

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6 years 5 months ago #66472 by nick2182
ITP and working/employment was created by nick2182
Hello all,

I have a question/scenario regarding ITP. My doctor has diagnosed my ITP as "chronic" due to ongoing low platelet counts and I've had ITP since approx 2013 with fluctuating platelet counts over the years, with a satisfactory response to oral prednisone. My haematologist seems to think my ITP was 'triggered' during a military deployment abroad due to contracting a viral illness, and platelets have been low/fluctuating ever since.

Has anyone had any restrictions for working/employment with ITP? and do people feel at all restricted in their place of work due to fear of injury and the general anxiety of having ITP. I currently work in an office job, with no real threat of injury unless I fall down a flight of stairs or something like that. However the thought of my platelets being low feels me with a feeling of great unease. I'm currently taking anti-depressants for mental health reasons and the combination of being on that medication plus an oral prednisone has sent me absolutely loopy. I'm just wondering if ITP and associated medication/treatment has negatively effected people's employment. And if so, if there's any published medical information with details how ITP may effect a person's employment/ability to work.

I know it's a weird question/scenario but thought I would put it out there. Thanks all.
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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6 years 5 months ago - 6 years 5 months ago #66476 by mrsb04
Replied by mrsb04 on topic ITP and working/employment
ITP itself should not affect your ability to work. I'm a frontline nurse and haven't had any problems other than feeling tired at times.
However you will need time off for haemo appointments. The side effects of high dose steroids when I was first diagnosed rendered me incapable of functioning normally so I had to take some time off.
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6 years 5 months ago #66480 by nick2182
Replied by nick2182 on topic ITP and working/employment
thanks for your reply