Platelet Disorder Support Association

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Just curious

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6 years 10 months ago #65458 by jlairmore
Just curious was created by jlairmore
So recently diagnosed with itp, and just kinda really lost with it, my counts were around 80000 and then put on steroids went up to 155000 and then within 2 weeks back down to 130000 after being off the steroids for its than a week. Had a really bad reaction to the steroids. Does anyone else feel really tired like when their counts are low. Any natural remedies that help with this? Just tired of being tired all the time and I work in schools so I'm always around sickly people then i get sick and my counts go back down. Any advice would be awesome!!!!
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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6 years 10 months ago - 6 years 10 months ago #65459 by mrsb04
Replied by mrsb04 on topic Just curious
Why are you on any treatment at all?
ITP doesn't need treating with a count >30k unless the patient has severe bleeding problems
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6 years 10 months ago #65461 by jlairmore
Replied by jlairmore on topic Just curious
I think he was just seeing if the treatment would help bring it back up initially, my iron levels were way low also, so i was also on iron twice daily. Does it make you feel extremely tired when your counts are low.
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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6 years 10 months ago - 6 years 10 months ago #65462 by mrsb04
Replied by mrsb04 on topic Just curious
How low do your platelet counts go?
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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6 years 10 months ago #65473 by Sandi
Replied by Sandi on topic Just curious
Low iron levels can also obviously cause fatigue, as can stopping Prednisone.

Your counts that you mentioned above are not really 'low'. Have they been below 80,000?
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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