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Splenactomey removed, waiting for the other shoe to drop!

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8 years 5 days ago #61296 by Amcbroom4211
Splenactomey removed, waiting for the other shoe to drop! was created by Amcbroom4211
I was diagnosed with itp in November 2016, i had taken 90mg of prednisone everyday for about 1 month couldn't get my number up past 50. So i chose to have the splectmony removal done. Numbers were at 480 when i had them checked in September.
I just have this fear that the numbers will drop,can anyone tell me how long they went when they had their spleen removed if their itp came back?

Thanks,
Amanda
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 4 days ago #61301 by Sandi
Replied by Sandi on topic Splenactomey removed, waiting for the other shoe to drop!
Amanda:

It's different for everyone. Sometimes counts never drop but sometimes it can be after a few weeks, months or years. Sometimes counts will drop after an illness, medication or vaccine. Sometimes they rebound and sometimes they don't.

Didn't your doctor suggest any other treatments before recommending splenectomy? That was awfully fast.

Try not to spend time worrying about it. If it happens, there are a few other options to try.
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8 years 4 days ago #61307 by CindyL
Replied by CindyL on topic Splenactomey removed, waiting for the other shoe to drop!
Like Sandi said, results vary. I had my splenectomy in 2006 and it worked for a month/month and a half.
I hope yours lasts a long time.
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8 years 2 days ago #61381 by Astanl9
Replied by Astanl9 on topic Splenactomey removed, waiting for the other shoe to drop!
I had my spleenectomy in February of 2016. I made it a year and a half without a relapse. On the upside I expected to be sick all the time and I've managed to not even have a cold!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 2 days ago #61385 by Sandi
Replied by Sandi on topic Splenactomey removed, waiting for the other shoe to drop!
Splenectomies don't really cause a person to get sick more often. The problem is that if you are exposed to certain bacteria, it can become serious very quickly.
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7 years 11 months ago #61826 by Lizzeth1208
Replied by Lizzeth1208 on topic Splenactomey removed, waiting for the other shoe to drop!
I had my spleen removed on May and my count dropped on September since then i haven’t reached a normal count.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 11 months ago #61827 by Sandi
Replied by Sandi on topic Splenactomey removed, waiting for the other shoe to drop!
I'm sorry to hear that, it happens often. What treatments have you tried?
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