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Celiac, gluten and ITP

  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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8 years 9 months ago #57539 by Hal9000
Replied by Hal9000 on topic Celiac, gluten and ITP
Sandi, as I recall you've had two Rituxan treatments. Obviously there must have been an ITP relapse after the first. Curious. Between the first and the second treatments, did you start avoiding gluten in your diet? What's the timeline on that?
ITP Types and Treatments by HAL
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8 years 8 months ago #57620 by penlyn63
Replied by penlyn63 on topic Celiac, gluten and ITP
So I've been totally gluten free for about 2 1/2 weeks. Since I never had any digestive issues from the celiac and from eating gluten, I feel no different. My platelet counts continue to rise and fall weekly, by about 20-30 each time: 93, 68, 82, 109, 70, 91.... The past 7 weeks have all been above 50 so I'm not complaining. I'm down to 5 mg prednisone and haven't had any withdrawal symptoms yet.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 8 months ago #57626 by Sandi
Replied by Sandi on topic Celiac, gluten and ITP
Hal:

I had four Rituxan infusions in 2003 and had 13 months treatment free. I had one infusion at that point and have been in remission since. I did not cut gluten out of my diet back then because I didn't believe in a diet connection. I do now.
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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8 years 8 months ago #57641 by Hal9000
Replied by Hal9000 on topic Celiac, gluten and ITP
Cheers to gluten free bread, foods, and over 100 counts penlyn63 !
ITP Types and Treatments by HAL
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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8 years 8 months ago #57642 by Hal9000
Replied by Hal9000 on topic Celiac, gluten and ITP
Thanks for that Sandi. On the bright side, one never knows. Staying away from gluten may have helped keep you in remission for so long.
ITP Types and Treatments by HAL
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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8 years 8 months ago #57896 by Hal9000
Replied by Hal9000 on topic Celiac, gluten and ITP
How are those fluctuations going penlyn?
LOL, guess I'm anxious for good news...
ITP Types and Treatments by HAL
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8 years 8 months ago #57932 by penlyn63
Replied by penlyn63 on topic Celiac, gluten and ITP
My weekly numbers continue to go up and down. Since I stopped the gluten 100% I've gone from 90 to 95 to 86 to 78. I'm glad I'm above 50, which is my goal. I'm still hanging with the 5 mg of prednisone and haven't had any withdrawal issues. I feel fine, (other than getting some petechiae when I scratched my arm for 2 seconds. THAT's attractive!) I'm going to give it some more time, of course, but it's very difficult to bypass pizza and peanut butter toast!
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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