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Medical alert ID

  • D.Mann
  • Topic Author
  • Offline
  • Diagnosed October 2016 Steroids, IVIG, Rituxin, Promacta, Spleen removed, Rituxin again. Currently weaning off Promacta and Prednisone.
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8 years 11 months ago #56277 by D.Mann
Medical alert ID was created by D.Mann
What is everyone's opinion on the need to wear or carry an alert bracelet?
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8 years 11 months ago #56286 by juliannesmom
Replied by juliannesmom on topic Medical alert ID
My daughter had ITP as a teen. (She entered remission over two years after diagnosis.) I made her wear a bracelet, especially while traveling or playing sports. Even nurses in the ER were unsure what ITP was, so her bracelet said "Bleeding risk - low platelets - ITP."
Norma
The following user(s) said Thank You: D.Mann
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8 years 11 months ago #56287 by Christine
Replied by Christine on topic Medical alert ID
I have had mine for over 25yrs (wearing it ) It gives me great peace of mind if I am unable to speak. Fortunately I have never been in that situation. Canadian contact: www.medicalert.ca
The following user(s) said Thank You: D.Mann
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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8 years 11 months ago #56289 by mrsb04
Replied by mrsb04 on topic Medical alert ID
You have ITP and are on steroids. I think you should be wearing one. I've had my SOS talisman round my neck since the very early days of my diagnosis.
The following user(s) said Thank You: D.Mann
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8 years 11 months ago #56290 by CindyL
Replied by CindyL on topic Medical alert ID
I stopped wearing mine when I went into remission. It had: ITP; on Prednisone; TMJ disease and under Thyroid. If the time comes that I have to wear it again, I'll have to make revisions to it. The Canadian Medic Alert has a watch that I want.
The following user(s) said Thank You: D.Mann
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8 years 11 months ago #56369 by Aoi
Replied by Aoi on topic Medical alert ID
I wear one, with "low platelet count" on it since few healthcare practitioners seem to know what ITP or even thrombocytopenia is. I also make sure that my chart and pharmacy information notes the problem.
  • D.Mann
  • Topic Author
  • Offline
  • Diagnosed October 2016 Steroids, IVIG, Rituxin, Promacta, Spleen removed, Rituxin again. Currently weaning off Promacta and Prednisone.
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8 years 11 months ago #56405 by D.Mann
Replied by D.Mann on topic Medical alert ID
www.roadid.com/

Pretty cool looking options, even dog tag option if you don't want the bracelet.
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8 years 11 months ago - 8 years 11 months ago #56477 by Lady Elly
Replied by Lady Elly on topic Medical alert ID
I have been wearing a Medical alert ID bracelet for approximately 6 years since I came down with ITP. I would not go anywhere without it. It has my name, bleeding disorder, low platelets, and I.T.P. on it.

Every morning I put my Medical ID bracelet and watch on automatically. It is a nice looking piece of jewelry which was costly when purchased. It gives so much peace of mind.
The following user(s) said Thank You: D.Mann
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8 years 11 months ago #56537 by Winnifred
Replied by Winnifred on topic Medical alert ID
I do not have a medical alert. When I was diagnosed I was a single mom with 2 kids could not afford.


When my daughter grew up and was working she bought me an Italian charm medical alert bracelet. So I have medical alert charm and on either side is a charm that is engraved one says ITP the other says Asthma then one more charm has my name engraved on it.


Like Lady Elly said I auto put watch and bracelet on daily. In the beginning it wasn't auto I'd forget sometimes. Now when I leave for work I actually have to grab each wrist to confirm because I don't always notice they are there!
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8 years 11 months ago #56767 by Anon77
Replied by Anon77 on topic Medical alert ID
There is also an ice app for iPhones- you can enter your platelet count, emergency numbers etc on your
Lock screen so people don't need the code to your
Phone. If you want you can register it with 911 so they know your #, address, diagnosis, and risk level.
The following user(s) said Thank You: D.Mann
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8 years 10 months ago #57311 by jane.brandi
Replied by jane.brandi on topic Medical alert ID
Just diagnosed this November and one of the first things I did was order one. Mine says ITP , Blood type and NKA (no known allergies) thought it was a no brainer. Saves time because all your medical information is instantly accessible through a code. The EMS/hospitals can call the 800# give the code # and all my meds/medical history/ surgical history/ contact info is on my profile. As a nurse, I am aware of how treatment comes to a grinding halt until questions can be answered. My vote.....get one and the sooner the better.
The following user(s) said Thank You: BeccaZita
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8 years 10 months ago #57319 by Lady Elly
Replied by Lady Elly on topic Medical alert ID
Jane.brandi,
I did not think of having blood type put on my medical alert bracelet, but that is a great idea.

I am not sure about the code that EMS and hospitals can call to get a patients profile. How does it work? Is it some code that is put on the medical ID bracelet?

Thanks.
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8 years 10 months ago #57320 by CindyL
Replied by CindyL on topic Medical alert ID
On my bracelet, I have an ID number. That could be what jane.brandi is talking about.

Good idea about blood type! I can put ICE on my phone too, just haven't gotten around to it.
  • D.Mann
  • Topic Author
  • Offline
  • Diagnosed October 2016 Steroids, IVIG, Rituxin, Promacta, Spleen removed, Rituxin again. Currently weaning off Promacta and Prednisone.
More
8 years 10 months ago #57321 by D.Mann
Replied by D.Mann on topic Medical alert ID
I went with the dog tag ID from the link I shared above. It is with me anytime I leave the house now. You can customize them with any information you want, pretty cool company.
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8 years 10 months ago #57405 by jane.brandi
Replied by jane.brandi on topic Medical alert ID
Yes, on the back of the bracelet there is an 800 phone number and there is also a long number on your bracelet, when the EMS call the 800 number and give the code it will link all the info that you have put online. don't forget to put your doctors contact numbers and your insurance info too. Saves SO much time in an emergency.
The following user(s) said Thank You: BeccaZita
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