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Just Diagnosed - Question about Follow-Ups

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9 years 6 months ago #53933 by lewlew
Just Diagnosed - Question about Follow-Ups was created by lewlew
I'm new to the world of ITP and am so glad to have found this resource!

I was just diagnosed and have been presenting low platelet levels for over 2 years. No treatment is required at this point and the hematologist has me coming in every 6 months for new counts - just wondering how often others are having their levels monitored? I want to be safe, but I dread going - serious phobia!!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 6 months ago #53935 by Sandi
Replied by Sandi on topic Just Diagnosed - Question about Follow-Ups
What are your counts?

Six months is probably okay, but if you have symptoms you'd need to call and get a CBC. Symptoms include excess bruising, bleeding gums, nose bleeds, petechiae or blood in urine.

Don't worry! :) ITP can be managed and life can be normal.
The following user(s) said Thank You: lewlew
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9 years 6 months ago #53939 by lewlew
Replied by lewlew on topic Just Diagnosed - Question about Follow-Ups
They were between 70 - 80 for a while, then 95 & now 61. Was hoping that since I haven't presented with very low levels and I have no other symptoms, I could stretch out the visits!

Thanks!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 6 months ago #53940 by Sandi
Replied by Sandi on topic Just Diagnosed - Question about Follow-Ups
Ha, six months is stretched out. I get that ignorance is bliss, but six months isn't bad. The longer you are stable, the longer you can go between visits.
  • midwest6708
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  • ~ Janet ~ Diagnosed Sept. 2008
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9 years 6 months ago #53941 by midwest6708
Replied by midwest6708 on topic Just Diagnosed - Question about Follow-Ups
At one point, I was running stable 50-70 counts for maybe three years straight and getting checked every 3 months. When it dipped into teens-20s, checks were stepped up to once a month.
I think your doctor is being generous and wouldn't fight him about a 6-month schedule.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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