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Feeling crazy

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9 years 7 months ago #53619 by Trishyrae
Feeling crazy was created by Trishyrae
I am new to all this and was wondering if anyone else felt like they were going crazy. I am not on any treatments so that can't be why but I feel like I'm on an emotional roller coaster. I am a pretty patient person being a preschool teacher and all but it seems like the littlest things set me off lately. One minute I'm irritated with my family over the littlest thing( they look at me like I'm crazy) and then I get upset and cry over nothing. I was wondering if this could be a side effect or if it's just stress from the recent diagnosis.
Trish
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 7 months ago #53621 by Sandi
Replied by Sandi on topic Feeling crazy
Trish:

Feeling emotional is not a symptom of ITP. It is more than likely a result of the emotions that can go along with a diagnosis. Most people do feel stressed in that situation, especially at first. You don't know what to expect and your life has been invaded with uncertainty.

The good part is that you are not treating and do not have to deal with side effects. That is when things can get even worse. It's possible that you may never have to treat and this could all just go away. Try to focus on the positive. For most people, ITP is just a pain in the butt and an inconvenience. It can take time to see it that way. Life goes on after an ITP diagnosis and nearly everyone lives a completely normal life, even if they do have to treat.
The following user(s) said Thank You: Trishyrae
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9 years 7 months ago #53622 by Jcallahan
Replied by Jcallahan on topic Feeling crazy
Hi There!
I was diagnosed in September and have been experiencing similar emotions. I find that I am much more weepy than I ever was.
It helps to talk to others experiencing this. I have also relied on my faith more than ever.
It's good that you are stable enough to not treat. Some of the meds are tough. Although I was very frightened to have rituxan, I did go through the treatment in January and found it uneventful.
Good luck
Joanne
The following user(s) said Thank You: Trishyrae
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9 years 7 months ago #53623 by Trishyrae
Replied by Trishyrae on topic Feeling crazy
Thanks for the info. Thankful for no meds yet. Keeping fingers crossed that my counts stop dropping.
Trish
9 years 7 months ago #53624 by
Replied by on topic Feeling crazy
Trishyrae what is your count - how long have you had the diagnosis?
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9 years 7 months ago #53626 by Trishyrae
Replied by Trishyrae on topic Feeling crazy
Last check they were at 57. So not bad at all. They have been dropping between 8-10 a month since Dr. noticed it in November. Next check in three days. I have only been diagnosed since end of January.
Trish
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9 years 7 months ago #53627 by Rob16
Replied by Rob16 on topic Feeling crazy
Trish,

Is there any possibility that another condition might be causing the mood swings? Thyroid problems can cause mood swings. So can Cushing's syndrome (which can also cause bruising and low platelets). Do you have any other symptoms that might indicate something else is going on? Weight change, for example? I would share any concerns with your doctor, to be sure.
9 years 7 months ago #53632 by
Replied by on topic Feeling crazy
Trishyrae you are right 57k isn't bad - I hope the dropping trend will stop and you will level out at a good count. Your doctor sounds like a good one, he didn't go into a panic as some here have said theirs do.

I've got thyroid problems and my moods don't swing - you know you were just diagnosed with ITP and you need to come to terms with that. Let your doctor know how you are feeling and maybe just talking with him will help. And we are here to talk to - ok?

Be sure to let us know what your next count is.
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9 years 7 months ago #53636 by tkine
Replied by tkine on topic Feeling crazy
I know before I was diagnosed, I was very fatigued, & that caused some emotions to come to the surface easily, because I didn't know what was going on. My count was at 8 then.
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9 years 7 months ago #53637 by Trishyrae
Replied by Trishyrae on topic Feeling crazy
Yes I have been very tired lately. Maybe that's it. Thank you
Trish
9 years 7 months ago #53641 by
Replied by on topic Feeling crazy
You take care of yourself - enjoy those precious preschoolers - and know if you want to talk we're here.
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9 years 7 months ago #53644 by Rob16
Replied by Rob16 on topic Feeling crazy
Trish,

You should ask for a check of your vitamin D levels. There is an association between onset of ITP (as well as other autoimmune diseases) and vitamin D deficiency, which in turn is associated with fatigue and depression (among other things).
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9 years 7 months ago #53659 by Trishyrae
Replied by Trishyrae on topic Feeling crazy
I will have to talk to Dr. About vit. D. Thank you.

I have been so tired the past three days. More than I have ever been. Also popped up with three blood blisters in mouth. Got cbc today but waiting on results. At what point should I call Dr. ? I feel like I'm just being paranoid.
Trish
9 years 7 months ago #53666 by
Replied by on topic Feeling crazy
You know your body - you should call the doctor when you feel you should. When do you get the CBC results - new blood blisters don't sound good. Look at the quote at the bottom of this - I think that says it all. I'd go in.
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9 years 7 months ago #53667 by Trishyrae
Replied by Trishyrae on topic Feeling crazy
Thank you. I hope to get results tomorrow.
Trish
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9 years 7 months ago #53670 by Trishyrae
Replied by Trishyrae on topic Feeling crazy
Woo hoo just got results platelets at 100. Still can't figure out why I am so tired and just got blood spots in mouth.
Does anyone know what 1PMV blood means? It's my only other count that's off. Thanks for everyone's info.
Trish
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 7 months ago - 9 years 7 months ago #53671 by Sandi
Replied by Sandi on topic Feeling crazy
It's the Mean Platelet Volume and it measures size. Most people with ITP have large platelets (reticulated, new). That's normal and doesn't mean anything.

I don't know why you'd have blood blisters either. Your count is great! Maybe you're tired from the stress of worrying. It can take a toll.
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9 years 7 months ago #53678 by Aoi
Replied by Aoi on topic Feeling crazy
Your counts are great. I live with numbers at or around 100 and don't consider my platelet count to be a significant issue in my life. There's a tendency to blame everything on ITP. But lots of conditions can cause fatigue and bleeding issues. I hope your physician is listening to you regarding such issues and ruling in/out other possibilities. I assume you've had a thyroid function test, just to pick one issue that can play a role in what you've mentioned. Of course, managing stress and making certain to get high-quality sleep is vital, too.
The following user(s) said Thank You: Trishyrae
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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9 years 7 months ago #53680 by mrsb04
Replied by mrsb04 on topic Feeling crazy
Any autoimmune disease can make you tired.
The following user(s) said Thank You: Trishyrae
9 years 7 months ago #53682 by
Replied by on topic Feeling crazy
Very glad to hear your count is good.
You know you have a busy life & now an autoimmune disorder - of course you are tired!
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9 years 7 months ago #53683 by Trishyrae
Replied by Trishyrae on topic Feeling crazy
Thanks I'm new to all of this so all of the advice is wonderful. Just don't know what to expect. I know every case is different so hoping counts stay up.
Trish
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