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10 years 6 months ago #47777 by mhardec
New Help was created by mhardec
A close relative of mine (+70 yrs old) has been diagnosed with ITP. She has been in the hospital for 5 weeks now. We have gone through all the treatments (Ritoxan, IVIG, Splenectomy) and have started Promactin (IV and oral). Her counts have been 1 to 6 for the entire 6 weeks. She has been given countless platelet transfusions and blood transfusions. Hemo's continue to drop as well, down around 7. The doctors have stated that they have tried everything humanly possible.

For those who have been through this, what questions should we be asking? Who should we be talking to? Any advice would be welcomed.
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10 years 6 months ago #47780 by Ann
Replied by Ann on topic New Help
I'd imagine that you need to seek the advice of a haematologist who is experienced in treating ITP. Presumably your relative received the usual four infusions of Rituxan and now needs to wait several more weeks before saying that that has failed. Also a splenectomy in a 70 year old is always likely to fail so that is not surprising.

Not sure what the Prolactin really is, especially IV. Have they tried Nplate? That would be another option which works for well over 80% of patients.

If nothing works then the diagnosis might be in doubt. Another opinion would be a good idea if at all possible.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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