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About these "blood rashes"...

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11 years 1 day ago #44726 by brennamadi
About these "blood rashes"... was created by brennamadi
Before I was diagnosed I got the purpura rashes from time to time, but it was before we found out my count was low. When the counts went up, the rashes weren't around. That being said, I have a rash on my chest, lightly arounf the inside of my elbow, and little pricks on my wrist, thigh, and foot. Should I be worried or is it common for them to just show up or is it something like a warning sign? I was just diagnosed a little over a month ago and don't know a lot about the disease or what comes with it. :( Any help would be appreciated.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 1 day ago #44727 by Sandi
Replied by Sandi on topic About these "blood rashes"...
If you do indeed have petechiae, it could mean that counts are down. Petechiae is not a rash; it is caused by small bleedings in the capillaries. It is flat, comes in clusters and does not itch.

If you think it is petechiae, you should probably schedule a CBC.
The following user(s) said Thank You: brennamadi
11 years 1 day ago #44732 by
Replied by on topic About these "blood rashes"...
I think you should have a CBC done to check your count.

I like the quote in my signature:
"Instead of wasting your time worrying about symptoms, just get it checked out." -Nieca Goldberg, MD

Hope you find your count is good!
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11 years 22 hours ago #44748 by Aoi
Replied by Aoi on topic About these "blood rashes"...
Experience is a great teacher. A petechial rash is sometimes associated with a very low platelet count, and other times is found in a low (but safe) platelet count. Only by having a few CBSs and talking over the results with your treating doc(s) will you know what's going on. I had regular platelet counts at the start of my ITP because of my tendency to bruise, though it turns out I just bruise easily.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 21 hours ago #44750 by Sandi
Replied by Sandi on topic About these "blood rashes"...
Aoi:

I'm confused. How could you have normal counts at the start of ITP? ITP can only diagnosed when counts fall below 100k.
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10 years 11 months ago #44776 by Aoi
Replied by Aoi on topic About these "blood rashes"...

Sandi wrote: Aoi:

I'm confused. How could you have normal counts at the start of ITP? ITP can only diagnosed when counts fall below 100k.


I used "regular" to mean "repeated" or "frequent," and not to mean "in the normal range." I guess I should have simply written "a lot of."
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10 years 11 months ago #44846 by brennamadi
Replied by brennamadi on topic About these "blood rashes"...
So I went for my CBC today and my platelets dropped from a 48 to a 23, the lowest they've been. On Friday I will be going to Tyler for another CBC, a second opinion, a platelet function test, a couple tests to see if I can take a drug, sadly I can't remember the name of it, and a possible blood marrow exam. They're starting to push the IVIG but my mom and I are refusing, at least for the time being. One thing that a nurse told me was that she and the doctor looked at my blood smear and they said my platelets are really tiny. She thinks it's possible that the machine just isn't picking them all up. I really don't want to do an IVIG and not need it. Has anyone heard anything about extremely small platelets? They said they hadn't and it's a bit confusing...
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 11 months ago #44847 by Sandi
Replied by Sandi on topic About these "blood rashes"...
That is unusual because most people with ITP have large platelets. Platelets shrink as they get older. People with ITP are known to have platelet fragments, but they usually aren't found on a blood smear (too small). I think I'd try to get some answers from that second opinion.
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10 years 11 months ago #44849 by Rob16
Replied by Rob16 on topic About these "blood rashes"...
There is a genetic disorder that causes small platelets, but it affects only males. Brenna is a female name?
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10 years 11 months ago #44863 by brennamadi
Replied by brennamadi on topic About these "blood rashes"...
Yes, I'm a female. The doctor and nurse said that they hadn't seen anything like it. I've tried to do some research, but it all brings me back to ITP. At first I was wondering if I was misdiagnosed but maybe small platelets can be a factor in ITP? Friday I'm going for testing so we'll hopefully get answers then. Also, at my appointment, my WBC was 2.5 and everything else had gotten higher. They also think my temp runs high- it was at 99.5 yesterday and the time before that 99.3.
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10 years 11 months ago #44864 by brennamadi
Replied by brennamadi on topic About these "blood rashes"...
Do you have a link to any site that explains that disorder or do you know what it is?
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10 years 11 months ago #44866 by Rob16
Replied by Rob16 on topic About these "blood rashes"...
Wiskott-Aldrich Syndrome. It ONLY affects males as it is X-linked recessive.

googling "small platelets" gave all these results and more:

en.wikipedia.org/wiki/Wiskott%E2%80%93Aldrich_syndrome

www.pdsa.org/resources/other-platelet-disorders.html

primaryimmune.org/about-primary-immunodeficiencies/specific-disease-types/wiskott-aldrich-syndrome/
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 11 months ago #44869 by Sandi
Replied by Sandi on topic About these "blood rashes"...
I couldn't find much on small platelets either, except for Wiskott-Aldrich. That isn't possible though.

Small platelets are not usually found in ITP as I said earlier. Since they are large when they are new, the body destroys them before they get older and smaller. Small platelets would seem to indicate a production problem. Most people with ITP also have problems with production, but still do not have a majority of small platelets.

I don't know...maybe this was just a flukey thing or the doctor is wrong. Discuss it on Friday when you see the new doctor.
The following user(s) said Thank You: brennamadi
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10 years 11 months ago #44872 by Rob16
Replied by Rob16 on topic About these "blood rashes"...
ONLY is too strong a word. If your father has the disease AND your mother is a carrier, then you can inherit it. Also, extremely remote possibility of random mutation. Also, if inherited, it would probably have shown up sooner, like infancy or early childhood.

Really strange, though, as there do not seem to be any other known causes of small platelets that do not have childhood onset. Please keep us posted!
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10 years 11 months ago #44920 by brennamadi
Replied by brennamadi on topic About these "blood rashes"...
My father isn't in the picture, I haven't had a civilized conversation with him in years. So any of his medical records are impossible to get a hold of, we go off of memory. All we know is that he had psychosis, bipolar disorder, and was epileptic. Knowing nothing about him is hard to rule out some diseases, especially if they're genetic. :(
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