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Very scared and nervous!

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11 years 3 weeks ago #44177 by CHELS04
Very scared and nervous! was created by CHELS04
hey everyone I go for my first hemo appointment Monday! Any advice would be great! what to expect ect

thanks
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 3 weeks ago #44180 by Sandi
Replied by Sandi on topic Very scared and nervous!
It all depends on your counts and the doctor. We all have different experiences with doctors. Some are very good dealing with ITP and some are not so great. A good doctor will sit and speak to you calmly about your options....treatment or simple monitoring.

What was your last count?
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11 years 3 weeks ago #44183 by CHELS04
Replied by CHELS04 on topic Very scared and nervous!
thank sandi!!! My last count was 2 weeks ago and it was 45. 2yrs ago my count was 250
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 3 weeks ago #44185 by Sandi
Replied by Sandi on topic Very scared and nervous!
If your count is still 45 (or above), the doctor should suggest monitoring it for a while until you drop to around 20 or 30 (or have bleeding), then treatments would be discussed.
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11 years 3 weeks ago #44186 by CHELS04
Replied by CHELS04 on topic Very scared and nervous!
ok how long will it take them to get my labs back I figured they would do another blood drawl just didn't know if I'd have wait a few days because I live an hr. away from my hemo.
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11 years 3 weeks ago #44187 by CHELS04
Replied by CHELS04 on topic Very scared and nervous!
I didn't know if they would do the same labs they did at my gp
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11 years 3 weeks ago #44189 by Aoi
Replied by Aoi on topic Very scared and nervous!
The turn-around time for a CBC (complete blood count, usually the test used to check platelet levels) is typically one day. However, if a facility has its own equipment onsite, which many hematology facilities do, then the time can be reduced to an hour or less. Other tests, including for instance a PTT (prothrombin time test, used to check how quickly a person clots), can take longer, again depending on what is available in-house.

Good luck with your appointment. I'm one of the people here who sees a hematologist for regular monitoring, as I currently do not need anything more.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 3 weeks ago #44191 by Sandi
Replied by Sandi on topic Very scared and nervous!
As Aoi says, it depends on the equipment they have. When I get a CBC at the Hemo's office, I sit there while they run the sample through the analyzer and the result prints out right away. It takes less than 3 minutes. They hand it to me and that's my copy. They print one for the doctor and file too. They are less formal with me though since I've been going there for 17 years and know the staff pretty well.

Some insurances require that the sample be sent out or done in a certain lab (sent out), so it depends on that too. All you need for the appointment is a CBC. The doctor may suggest other labs to check for other things, but they don't all do that.
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11 years 3 weeks ago #44197 by Aoi
Replied by Aoi on topic Very scared and nervous!
One lab I went to a couple years ago had a very friendly phlebotomist. On a slow day I asked her if she'd mind giving me a tour of the equipment, and she did. I found it helpful to see the equipment up close and understand what goes on after they get the blood into the tube.
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11 years 3 weeks ago #44198 by CHELS04
Replied by CHELS04 on topic Very scared and nervous!
o ok thanks everyone for your help! this is pretty scary for me i have never been sick with anything other than the flu a few times so this is a big deal for me. im just curious how fast an if my levels have changed.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 3 weeks ago #44199 by Sandi
Replied by Sandi on topic Very scared and nervous!
I guess you'll find out. Good luck and try not to worry. Either way, everything will be okay.
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11 years 3 weeks ago #44200 by CHELS04
Replied by CHELS04 on topic Very scared and nervous!
thanks sandi! so how often do u get ur blood drawls
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 3 weeks ago #44202 by Sandi
Replied by Sandi on topic Very scared and nervous!
That depends on your counts, if you are on treatment or not, and how often the doctor wants it done.
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