Platelet Disorder Support Association

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just diagnosed meeting people in same boat

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11 years 3 months ago #42285 by jadelou24
just diagnosed meeting people in same boat was created by jadelou24
Hi, I'm a 24 year old mother to 2 girls I got diagnosed last week with low platelets I came out in a rash on Wednesday blood tests showed I had 6 platlets went to the main hospital yesterday to meet my doctors they went up to 16 so that was better news they are not treating me just yet he said next week he will check again how there doing over has a small bleeding of the gum but nothing serious over joined this group to meet other people in the same position this does not run in the family it's just happened to me: ) but uI've a question for anyone who comments what was your lowest platelet count before you got treatment? :) .
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 3 months ago - 11 years 3 months ago #42288 by Sandi
Replied by Sandi on topic just diagnosed meeting people in same boat
Hello. When a person receives treatment isn't always decided by the count, sometimes it is up to the individual doctor and the symptoms of the patient. Most would treat under 10 or 20, but if someone has few symptoms, sometimes the doctor will wait a bit to see if the counts come up on their own. Prednisone is usually the first treatment choice and the side effects can be bad. It's good that your doctor isn't panicking, some do.

ITP usually doesn't run in the family, but if your family has a history of autoimmune disorders, it is more common for some of the members to acquire an autoimmune disorder of some sort. ITP can also be triggered by a virus or bacterial infection, or certain herbal supplements such as Echinacea.
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11 years 3 months ago #42346 by johncarp25
Replied by johncarp25 on topic just diagnosed meeting people in same boat
Hi, I have had this since 2012.

Only just started treatment my levels dropped to 7,000. I am on prednisolone, I was covered in bruises and one particularly large one that appeared to be spreading / active bleeding, so I think that was the key for me, I went on some anti bleeding tablets initially.

My counts responded to the prednisolone, and I am being tapered off it. So it's a case of let's see what happens next.

The first time, I got bruises and I was diagnosed I was monitored weekly, then monthly and my counts sort of rebounded. Fingers crossed your'll go up.
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11 years 3 months ago #42350 by Ann
Replied by Ann on topic just diagnosed meeting people in same boat
jadelou, your doctor isn't panicking with is a good sign that he/she knows their stuff. It's a good idea if the platelet count is going up to wait a bit and see if it continues up or comes back down. I'd guess that if the next count is much lower they'll want to treat. The doctor will look at a trend rather than one particular count.. if that makes sense.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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