Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Mouth blister newbie - Advice needed

  • midwest6708
  • Topic Author
  • Offline
  • ~ Janet ~ Diagnosed Sept. 2008
More
11 years 10 months ago - 11 years 10 months ago #38521 by midwest6708
Mouth blister newbie - Advice needed was created by midwest6708
In the 5 years since my diagnosis, this is my very first mouth blister ever, and it's a doozy.
On the soft palate of my mouth... half-inch in diameter, close to a quarter-inch thick.
Enlighten me on what to expect, please.
How do these things generally play out?
Is it a given that it'll pop? (Oh uck... How I hate the taste of blood.)
Would popping it on purpose make it disappear faster?


Any and all 'feeding and care' tips are welcome.
More
11 years 10 months ago #38522 by Rob16
Replied by Rob16 on topic Mouth blister newbie - Advice needed
Janet, I have no personal experience, but I have read that Difflam can help. It is an NSAID for oral use. Non-prescription, comes as a rinse or a spray.
The following user(s) said Thank You: midwest6708
More
11 years 10 months ago #38524 by Mcochran
Replied by Mcochran on topic Mouth blister newbie - Advice needed
Hello Janet.

My wife was diagnosed 2 months ago and she has dealt with little ulcers in her mouth quite a bit since then. Basically, they are the symptom that lets her know her count is down around 2.

She was given a mouthwash for these while in the hospital called paradax and that seemed to help her with them. When she gets them, it is normally several and they are all larger than what you described.

I know they're awful. Sorry you have to deal with those.
The following user(s) said Thank You: midwest6708
  • midwest6708
  • Topic Author
  • Offline
  • ~ Janet ~ Diagnosed Sept. 2008
More
11 years 10 months ago #38534 by midwest6708
Replied by midwest6708 on topic Mouth blister newbie - Advice needed
Thanks, guys.

The blister went down on its own last evening, and I noticed no taste of blood, thankfully. The spot is very sore today. I could do without this, but I know it's a lot worse for many folks.
Wishing your wife well, Mc.
More
11 years 10 months ago #38535 by Lori1220
Replied by Lori1220 on topic Mouth blister newbie - Advice needed
My 15 y/o daughter has always experienced mouth blisters (Wet Purpura) when her counts drop below 10K. She has had ITP for 3 yrs now (WOW! Where did the time go?).Sometimes she will have blood on her pillow in the morning when they drain. She does not complain of soreness in her mouth though. Usually, the blisters are a sign to us that it's time for treatment. Best wishes.
The following user(s) said Thank You: midwest6708
  • midwest6708
  • Topic Author
  • Offline
  • ~ Janet ~ Diagnosed Sept. 2008
More
11 years 10 months ago - 11 years 10 months ago #38554 by midwest6708
Replied by midwest6708 on topic Mouth blister newbie - Advice needed
Well gee... There's no rhyme or reason. My count today is 77. I seem to have fewer signs when count is under 10 than when it's in this range. I get some nose oozes, bruises, and now the blister when I'm in the 30 and up range. So, it seems I'll never be able to say with certainty when I urgently need to see a doctor.
ugh
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
11 years 10 months ago #38561 by Sandi
Replied by Sandi on topic Mouth blister newbie - Advice needed
I've been fooled a few times too. I thought I could always tell by symptoms, but I was surprised a few times. I learned to never say 'never' or 'always' when it came to ITP.
More
11 years 10 months ago #38567 by Vdeutsch85
Replied by Vdeutsch85 on topic Mouth blister newbie - Advice needed
I wish there was a definite red flag. I had a huge bruise on the back of my leg over thanksgiving that's still there, but my count was at 77. We are count twins! Lol. I think my symptom of very low counts is the fatigue and achiness. The petichae and bruising are more challenging to judge by.
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use