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from Puerto Rico :0)

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12 years 1 month ago #36596 by lhernandez
from Puerto Rico :0) was created by lhernandez
Hello

My name is Lizbeth Hernandez, I live in Puerto Rico and was recently diagnosed with ITP. I lived my life in a normal way, without symptoms. In a routine appointment on CBC realized that my platelet count was at 30. It was when they decided to hospitalize. The first treatment I had was of Solu-Medrol which helped in any way to climb the platelets to 120, then began to drop, even with the Solumedrol in 60. Gammaglobuline tried as the 2nd option and this made ​​my body started creating Macroplaquets after 3 days again began to fall. I was discharged after 19 days in hospital and had to be hospitalized again week since my platelets dropped to 15 again. Once hospitalized me two apheresis platelets transfused (RH negative) and my platelets carry 5 days over 100. Similarly I have Solumedrol 60 and am awaiting me extirpate the spleen.

If you speak Spanish, you could go to facebook.com/itp.puertoricom
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 1 month ago #36597 by Sandi
Replied by Sandi on topic from Puerto Rico :0)
Hello there. Sorry about the ITP diagnosis. I'd like to suggest that you get a second opinion before you go any further.
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12 years 1 month ago #36604 by lhernandez
Replied by lhernandez on topic from Puerto Rico :0)
Thank you Sandy. I just want to let you know that the insurance here are not that easy. After 3 treatments they said the other treatment is to get the spleenectomy. Is not my best choice but I don't have other option :0(.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 1 month ago #36608 by Sandi
Replied by Sandi on topic from Puerto Rico :0)
I'm sorry to hear that. Sometimes ITP resolves by itself within a year, and a splenectomy may be unnecessary and can lead to future problems. Whether or not to have a splenectomy is usually the patients choice, so it's a shame that you feel forced into it.
12 years 1 month ago - 12 years 1 month ago #36610 by
Replied by on topic from Puerto Rico :0)
Hi Lizbeth - if I go to translate.google.com I can copy one of your posts and paste it there and it will translate it for me. My sister was fortunate to visit Puerto Rico and she really liked it there, very beautiful she said.

I'm sorry your only option now is spleen removal. Please keep us posted about what you will do.

My best to you!