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Thought they'd tell me to come get tested in a mon

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12 years 1 month ago #36004 by RHofm50129
Thought they'd tell me to come get tested in a mon was created by RHofm50129
I took my last steroid pill today. Hallelujah. CBC still at 350,000. I thought the doctor would say to go a month without a test. They had to stick me 3 times to get blood today. sometimes it has been 4 times! I was looking forward to the end of that business. It has been 4 1/2 months since my ITP event. For the last 4 I have had platelet counts generally between 300 and 350, once 407, once 233,000 but that was with clumping. Don't you think I should be able to go a month before I retest??
12 years 1 month ago #36007 by
Replied by on topic Thought they'd tell me to come get tested in a mon
Do what you want, it is your body - but maybe they are going to make sure that since you are off prednisone now that your platelets don't crash and you have another ITP event. Never know what can happen once off prednisone.

Do you know you posted this in the News & Suggestions section?

Good luck to you, hope you never have another ITP event in your life!
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12 years 1 month ago #36020 by RHofm50129
Replied by RHofm50129 on topic Thought they'd tell me to come get tested in a mon
No, I didn't realize that it had posted there. I just clicked on new topics. :(
  • dru
  • Offline
  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 1 month ago #36032 by dru
Replied by dru on topic Thought they'd tell me to come get tested in a mon
Congratulations on getting off of prednisone :).

In the past when my counts have been like that my doc has gone to monthly then every 3 months then 6 months.

Weekly seems like too much where you have been stable on very little prednisone. Why don't you ask the doc for his reasoning for weekly counts and ask if you can wait.
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12 years 1 month ago - 12 years 1 month ago #36052 by openhanded
Replied by openhanded on topic Thought they'd tell me to come get tested in a mon
My counts have been stable for a few weeks now, and my hematologist said that I can wait a month to get my blood drawn instead of weekly now. I wish you good luck. I'm glad your counts are stable. Congrats on getting off of prednisone. I can't wait until I'm off of it.
Diagnosed: August 2013, lowest count 2k.
Treatments: IVIG, Prednisone, transfusions.
Current Count: 233k, 12/23/2013.
Currently: Watching/waiting.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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