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Diagnosed with ITP with a zero platelet count

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12 years 2 months ago #35484 by Jodynik
Diagnosed with ITP with a zero platelet count was created by Jodynik
Just diagnosed when taken by ambulance from doctor to hospital due to a zero platelet count. I stayed in hospital for 4 days on steroids, and IGG bags. Let out on Friday on prednisone 90 mg and a platelet count of 76. Still cause searching , any advice?
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12 years 2 months ago #35485 by eklein
Replied by eklein on topic Diagnosed with ITP with a zero platelet count
Read everything on this website! That's the best advice.

Then get a good hematologist familiar with ITP to make sure your doctor isn't over-reacting and is following the best and newest practices.

Are you having any bleeding symptoms, or were you?
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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12 years 2 months ago #35487 by Jodynik
Replied by Jodynik on topic Diagnosed with ITP with a zero platelet count
I started having bruising, bleeding from mouth, mouth sores, and bleeding from cuts. Also blood in urine and stool.
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12 years 2 months ago #35488 by eklein
Replied by eklein on topic Diagnosed with ITP with a zero platelet count
Sounds like a good and successful intervention then, some scary symptoms. Now the next step is to work with a smart doctor to monitor and plan how to treat as needed.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
  • CindyAnn
  • Offline
  • Diagnosed Jan 10, 2008. Rituxan treatment in May 2009. Treated with Prednisone off and on until 08/23/17 - 12.5mg Promacta as of 10/22/17
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12 years 2 months ago #35489 by CindyAnn
Replied by CindyAnn on topic Diagnosed with ITP with a zero platelet count
Jodynik,

Sorry to hear about your introduction to ITP :( I agree with Erica - the best thing to do is READ READ READ and make sure to find a Hematologist that KNOWS ITP. The right Doctor can make all the difference in treating or not.

There are several ITPers here that have a lot of great advise and I am sure you will find many answers here.

Keep us posted.

Cindy Ann
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12 years 2 months ago #35493 by jeffrey71
Replied by jeffrey71 on topic Diagnosed with ITP with a zero platelet count
Jodynik!

Welcome to "us"! :) It sounds like your doc did you well. Read everything you can find on this website. Knowledge is power and comforting. You will go through several phases, scared, mad, and worried were my biggies. It gets better! Talk about it, and learn. Relax and do your normal stuff, don't fret!

The ladies that have posted on here have a wealth of knowledge and will help however they can, they are just great! From my personal experience the info I get here is just as good as I get anywhere else, including my docs!

Nice to meet you! You will be fine! You have new friends!

Jeffrey
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12 years 2 months ago #35639 by Winnifred
Replied by Winnifred on topic Diagnosed with ITP with a zero platelet count
Welcome sorry your here but this a great place the web site has amazing information. The chat forum has amazing people who understand and have a vast knowledge.
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12 years 2 months ago #35666 by Vdeutsch85
Replied by Vdeutsch85 on topic Diagnosed with ITP with a zero platelet count
Welcome! I was diagnosed in dec with a platelet count of 2. This website and the pdsa organization have been god sends for me. I also agree.....find a doctor that knows itp....it makes all the difference!

Valerie
Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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