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Md pdsa conference

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12 years 4 months ago #33576 by Vdeutsch85
Md pdsa conference was created by Vdeutsch85
Anyone going to the conference? My bf and are going. I hope to learn a lot and develop a more positive outlook on living with itp. Hopefully some of you will be there as well!
  • dru
  • Offline
  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 4 months ago #33603 by dru
Replied by dru on topic Md pdsa conference
I'm not going to the one in Md but when it was in Boston 2011 I went and I loved it. It was so nice to hear the ITP specialists talk and they answered so many individual questions. It was great to sit and have lunch with others with ITP and listen and share stories.

Glad you are going to get to go!
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12 years 4 months ago #34021 by llbitty
Replied by llbitty on topic Md pdsa conference
This is the first time I am attending the conference, so I am very excited to meet others with ITP in person & hear from the doctors. I am only able to go on Saturday, but I hope to gain alot from going!
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12 years 4 months ago #34032 by Vdeutsch85
Replied by Vdeutsch85 on topic Md pdsa conference
We are not getting in until late fri night so we can only attend sat and sun morning
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12 years 3 months ago #34496 by Kim081
Replied by Kim081 on topic Md pdsa conference
Valerie I hope you will have lots to share with us when you get back.
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12 years 3 months ago #34503 by Vdeutsch85
Replied by Vdeutsch85 on topic Md pdsa conference
I will def bring back lots to share with the group! My bf, who is a doctor is going as well so he can be a 2nd set of ears and maybe help put things into more patient friendly terms!
The following user(s) said Thank You: Jacchab
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12 years 3 months ago #34885 by Vdeutsch85
Replied by Vdeutsch85 on topic Md pdsa conference
I highly recommend going to the conference at least once! Talking to others with the disease and gearing world renowned experts tAlk was amazing.
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12 years 3 months ago #34920 by Kim081
Replied by Kim081 on topic Md pdsa conference
Valerie any new information out there? New treatments, etc.? Do tell!! :)
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12 years 3 months ago #34925 by Vdeutsch85
Replied by Vdeutsch85 on topic Md pdsa conference
Kim,

I wish there was but not a whole lot. It was the first time I had heard about experimental bone marrow transplants, but didn't sound too promising. There is a drug similar to Rituxin in trial phases.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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