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5 months and still Platelets @ 12,000

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12 years 9 months ago #30340 by jchrism8
5 months and still Platelets @ 12,000 was created by jchrism8
:(
Ahhhh so stressful. 5 months ago back in August I was told I had ITP, my platelet count was at ZERO !!! After weeks and months of seem to be useless treatments and having my spleen taking out only after the 1st 3 weeks of having this blood disorder. My platelet count is still bout 12,000 now , only bein as high as 22,000.
My Doctor only seem to care about getting my count up to 50,000 which hasnt happen yet... I n the meantime its a struggle everyday to find enough energy to go on during the day and evening. Im so tired from the time I get to work bout 7am til I go to sleep at night. My dr says low platelets WONT cause a person to be fatigue. But I knw he is wrong, I have it constantly..Ugh
I just want em to find out the reason I have this , as everyone dealing with this problem does !!!!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 9 months ago #30343 by Sandi
Replied by Sandi on topic 5 months and still Platelets @ 12,000
Some people have fatigue with low counts and some do not. It seems to be an individual thing. One thing I have noticed is that a good bit of the time, some people find that they have another medical disorder that can cause the fatigue. Examples are: Low B-12, Low potassium, thyroid disorder, low Vitamin D, etc. Some people have also found that B-6 can help with energy levels.

Some of the treatments can also cause fatigue, namely Prednisone. It can last for months after you stop taking the drug.

Other than having more tests done though to rule out other things, there isn't much you can do about it. Actually, staying active (taking walks, etc) can also help.
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12 years 8 months ago #30629 by porqupine
Replied by porqupine on topic 5 months and still Platelets @ 12,000
i to have fatigue everyday my count has been at 11 for 5 years with no treatment my hemo told me itp does not cause fatigue its hard at times but you will be ok.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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