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sore muscles / hearing an echoing noise

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12 years 9 months ago #30061 by mkreid
I have been tested by means of a bone marrow biopsy and have ITP. My first treatment was steriods for a couple of months and my last treatment was 4 infusions of Retoxin. Since the last treatment I have been having trouble with my left rear thigh muscles hurting when I sit or stand. After I sit for a few mintues the pain stops and after standing the same. I also hear an echoing noise/sound in my ears after getting up from sitting and after a few mintues it too goes away. Has anyone else experienced this after treatment with Retoxin?
Thanks,
Danny
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12 years 9 months ago #30062 by eklein
Replied by eklein on topic sore muscles / hearing an echoing noise
The thigh muscle pain sounds like steroid withdrawal to me - where are you at with getting off prednisone? I had pain like that for about three months after stopping.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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12 years 9 months ago #30076 by mkreid
Replied by mkreid on topic sore muscles / hearing an echoing noise
Thanks for the reply Eklein. I stopped taking the prednisone about a month ago. I took it for a couple months. The first month was 110mg per day. After it was seen to not be working the dose was reduced over the last month I took it.
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12 years 9 months ago #30079 by eklein
Replied by eklein on topic sore muscles / hearing an echoing noise
My thigh muscles and neck muscles were the worst from prednisone withdrawal. I hope that's it - it sounds just the same, and it should go away before long.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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12 years 9 months ago #30088 by Jennprov22
Replied by Jennprov22 on topic sore muscles / hearing an echoing noise
I think I'm going thru the same thing and have also had the ear noise on and off. Was glad you asked this question and hoping someone would answer about that, too!

Seems like going off the Pred is no easy task. :unsure: