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Should I contact the doctor?

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12 years 10 months ago #29567 by ambermarie3282
Should I contact the doctor? was created by ambermarie3282
I was diagnosed with ITP last January (had a platelet count of 8,000) I had a platelet transfusion and was on high dose prednisone for a few months. since then my platelet count has been above 100,000 so they haven't done any other treatment. I haven't had my count checked in a while and I notice a few of the "blood spots" (Can't spell the technical name) and last night when I brushed my teeth my gums were bleeding uncontrolably for a while. This morning I looked in the mirror while in the bathroom and my gums had started bleeding a little again for no reason. Should I contact the doctor? Since I've had ITP I never know when I should call and when I'm over reacting....it's so hard to know. THANKS!!!
12 years 10 months ago #29568 by
Replied by on topic Should I contact the doctor?
There is doubt in your mind, of course you should get a count done!

I have always thought this was a great quote:

"Instead of wasting your time worrying about symptoms, just get it checked out." - Nieca Goldberg, MD

Good luck!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 10 months ago #29573 by Sandi
Replied by Sandi on topic Should I contact the doctor?
Yes, I would say it's time to get a count done. Anytime you notice symptoms, a CBC is wise. Many of us have a standing order at the hemo's office and can walk in and have an instant count done anytime. Maybe you could arrange something like that.
The following user(s) said Thank You: ambermarie3282
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12 years 10 months ago #29574 by ambermarie3282
Replied by ambermarie3282 on topic Should I contact the doctor?
I have a standing ofer at the hospital, but wtih working it makes it hard, by the time i get in then my hemotologist doesn't get the results till the next day, and he is only in 1 day a week....so it's really difficult for me to get answers...
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 10 months ago #29578 by Sandi
Replied by Sandi on topic Should I contact the doctor?
Hmmmm. I would usually get the count done, and then one of the nurses would contact me by phone with the treatment plan, if needed. I rarely saw or spoke to my hemo which was fine since things were easily coordinated. Guess you just need a plan.
The following user(s) said Thank You: kym
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12 years 10 months ago #29584 by Lady Elly
Replied by Lady Elly on topic Should I contact the doctor?
I have a standing order at my doctor's office to have my platelets checked at anytime. I am in and out of the lab within 5 - 10 min. The platelet count is printed out on paper prior to my leaving the lab. When I have any large bruising, bleeding, or prior to hematologist appointment, I have my platelets checked. It's great that they have a nice lab and I know the results within 5 - 10 min.
The following user(s) said Thank You: ambermarie3282
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12 years 10 months ago #29586 by ambermarie3282
Replied by ambermarie3282 on topic Should I contact the doctor?
wow, that would be nice!! I am actually thinking of switching hemotolgists, my friend went to the one I am currently going to a while a go and got no answers for the problem she was having, but was recently referred to a different hemotologist and is getting answers and on her way to a solution. I live in a smaller town and there is only one hemotologist that comes here from a bigger city nearby, so I am just going to start going to the bigger city for help. Thanks for all your input!!!
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12 years 10 months ago #29612 by ambermarie3282
Replied by ambermarie3282 on topic Should I contact the doctor?
I went to the dr. my count was 125...so I guess I was worried for nothing, but atleast now I have piece of mind. I am in the process of all the tests for lupus and other autoimmune diseases so i'm back to the waiting game!! THANKS everyone for your kind words and support!
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12 years 10 months ago - 12 years 10 months ago #29625 by Lady Elly
Replied by Lady Elly on topic Should I contact the doctor?
Ambermarie,

That is great that your counts are so good!

My platelet count was 8k today. I haven't taken any medications for the past year. I don't have any bleeding or any problems except feeling very tired all the time.
The following user(s) said Thank You: kym
12 years 10 months ago #29634 by
Replied by on topic Should I contact the doctor?
ambermarie I'm glad to see your count is a good one! Hope you get good news on those other tests!
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