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ITP first, now other signs... advice please?

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13 years 5 days ago #28695 by judy.wu
ITP first, now other signs... advice please? was created by judy.wu
Hello!
I was diagnosed with ITP almost 7 years ago. My platelets count has always been below normal (average with prednisone treatment 80,000)
During the past year I've been showing some additional abnormal blood values such as slightly low hemoglobin and hematocrit and also high levels of lymphocytes (around 50 - 55%)

So far, I don't see my doctor concerned. Should I be? Do I need a second opinion?

Thank you in advance for your advice. ;) :)
  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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13 years 5 days ago #28696 by Kelirae24
Replied by Kelirae24 on topic ITP first, now other signs... advice please?
Hi I'm 26 I got diagnosed when I was seventeen all my blood levels are always off I know my rdw I think it is is always high not drastically high just a little my hemoglobin also is sometimes a little low like 10 or 12 but usually goes back up itself my hematocrit is also sometimes a little low and my lympocytes are sometimes high when I asked my doc said by the ranges they are low but not a danger and he just keeps an eye in them I would just say ask every time your concerned but my blood tests are usually full of Lows and highs I'm sure your doctor is watching them
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13 years 5 days ago #28699 by Ann
Replied by Ann on topic ITP first, now other signs... advice please?
If your haemoglobin is a bit low try eating more iron rich foods. And it is normal for the lymphocytes to be high when on steroids. It's not however a good idea to be on steroids for long as they do have permanent side effects. There are other treatments to try.
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13 years 5 days ago - 13 years 5 days ago #28701 by Dean
Replied by Dean on topic ITP first, now other signs... advice please?
What are your counts when not on Prednisone? I would not rely on Prednisone to sustain counts. As Ann mentioned long term use can have permanent side effects. Have you tried other treatments?
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 4 days ago #28702 by Sandi
Replied by Sandi on topic ITP first, now other signs... advice please?
If your doctor isn't worri4ed, you don't need to be worried either. Blood counts sometimes fall out of range, but that doesn't mean anything is wrong. Have you asked him?
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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