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Another newly diagnosed

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13 years 4 days ago #28720 by DeeDee Marie
Replied by DeeDee Marie on topic Another newly diagnosed
Kelirae,
Your story is very inspirational for all of us and I know to Kym who has been posting. It goes to show that you can live with low platelets and still have a life.

Kym,
You will get there--try not to stress too much as this makes your platelets worse at times. Sometimes it takes a healing process for your symptoms to slow down. It can be some weeks before this may happen. Do talk to your doctor like others have mentioned about rituxan. This seems to work for a lot of ITP patients and wouldn't be as expensive as N-plate.

Wishing you the best and that you heal real soome.

Dee Dee
The following user(s) said Thank You: kym
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13 years 4 days ago #28728 by kym
Replied by kym on topic Another newly diagnosed
THX WILL DO
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13 years 4 days ago #28730 by Dean
Replied by Dean on topic Another newly diagnosed

kym wrote: thx everyone for sharing I am going to pass on the chiropractor i do have a hematologist just wanted to try an alternative to the pred I did schedule an appt with another hematoligist just to c if she is more informed about ITP will b talking to my dr about trying the rituxan and nplate thx everyone have to have labs friday hope this IVIG last a couple weeks with high numbers will keep u updated praying for us all


Hope the counts come back higher.
The following user(s) said Thank You: kym
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12 years 10 months ago #29483 by rmegrrrl
Replied by rmegrrrl on topic Another newly diagnosed
Since the beginning of my journey in September, and nearly a month of prednisone, I completed the Rituxan treatment. The first treatment was the worst by far...I had an adverse reaction of all of the sudden feeling like my throat was on fire. They stopped the treatment and added more benadryl. I felt kind of flu-like the next day, but not terrible. The other treatments were uneventful, and my platelets were fluctuating. Now, 3 weeks after my last treatment, my levels have jumped from 87 to 165 as of yesterday! My dr will continue to monitor, but that is so awesome! I'm normal! (Yeah, my family didn't go for that normal thing either!) LOL I can say I was a little surprised, since my bruising had increased quite a bit since my last blood test, but I'll trust the result and God! Thanks for your support and guidance! And Kim, I hope you are doing better now!

Thanks!

Jill
Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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