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In the hospital

  • nb9094
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  • Just living the dream. nb9094@aol.com
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13 years 3 months ago - 13 years 3 months ago #25947 by nb9094
In the hospital was created by nb9094
Went in to Togus VA tuesday morning to have blood checked and ran into Hemo Doc in the hall.
Asked her about next visit whith her, "I'll give you call if anything is wrong, but follow up with Boston on monday with the surgeon for the splenectomy.
Didn't make it out of the hospital before she called and told mt to go to the ER NOW. She was going to admit me so Boston would have to take me now and not make me wait to see the surgeon, then wait for an appointment.
Was going to Boston.
Wasn't going going to Boston.
Was going to Boston
Wasn't going to Boston.
ER doc made the call on giving me an IVIG, because he thought they were going to send me home and he wanted to get me in the safe zone. Last Monday I went from 6 to 38 with one bag and then Tuesday went up to 95 with the second bag. So me and the ER Doc. Thought one bag would would get me between 35-45. WE WERE WRONG! Don't understand why.
Hemo Doc. came down and said she got me into Portland which is Maine Medical Center. This was good because it would be a second opinion, which mt wife wanted. Brought me down by ambulance at 10:00 pm. They check my blood and it only had gone up to 9, but it had only been an hour travel time. Next morning it was 11, then 12 at the end of the day on the 4th. Thursday....9. This morning, friday, 5. Tonight the bottom fell out.
The Hemo Doc in MMC gave me the option on thursday, Splenectomy or try Rituxan. "Up to you Doc." So she wanted to give the Rituxan a try first. This morning she wanted to give me four day's of Dexamethasone. 10 pills this afternoon. That means no more Pred., which makes me happy. Took tape of my arms from the plasic after i showered, looks like you took a baseball bat to my arms. I have never had bruises like this in my life.
Can't figure out why I didn't go up higher than 12 and then back down so fast.
I'm glad she pushed so hard to get me in the hospital. I thought I would have been thinking I was safe and doing whatever I wanted.
Neil
  • nb9094
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13 years 3 months ago - 13 years 3 months ago #25957 by nb9094
Replied by nb9094 on topic Re: In the hospital
The Hemo Doc just came in and my platlets went up to 28. I think it must the Decadron (Dexamethasone) because from what I have read and what the Doc said I wouldn't notice any thing from the Rituxan for at least two weeks.
Doc said if its up more on Sunday she will let me go home.

Thanks, Neil.
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13 years 3 months ago #25961 by debb
Replied by debb on topic Re: In the hospital
I am so glad they found your low count in time but thats interesting that the treatment that helped in the past didnt help this time. Heres hoping for you you count is up enough for you to go home sunday. Ive been reading about other people's treatment's and ive found it all very interesting as i havent had any help or found any groups here in Aus so im happy to have found this site so now i can find out more. Good luck and fingers crossed for you.
The following user(s) said Thank You: nb9094