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The new me since diagnosed 1/11

  • Topic Author
13 years 5 months ago #24412 by
Hey Peps well i was newly diagnosed Jan 11 2012. it took a lot out of me losing the old me. my body let me know its flow of life . once it went down to 3000 platelets i lost that connection. so i had to find the new me and i'm almost 50. i feel it was my time to change my life. find a new me. well i don't worry about my ITP i just decided to live a fun life doctor. appointment by appointment. its a waiting game on treatment options but that is a future decision I've already made. to embrace my ITP i got a large tattoo on my back with a great tree of life with a face in it representing me. and Chinese characters next to it that says march courageously onward,. i don't know if it was the safest thing for my ITP but it is my way of welcoming the new challenge. i even started yoga classes.
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13 years 5 months ago #24417 by eklein
Replied by eklein on topic The new me since diagnosed 1/11
Great looking tattoo! Did you design it yourself?
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
  • Topic Author
13 years 5 months ago #24419 by
Replied by on topic The new me since diagnosed 1/11
actually i did design it. thanks for liking it. its my personal piece that reminds me to go onward or forward as far as my tree of life will take me
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13 years 5 months ago #24434 by damanning71
Replied by damanning71 on topic The new me since diagnosed 1/11
Hi Mike,

I was diagnosed in February of 2012. Welcome to the forum. You have a great attitude. We are not disabled by any means. I'm still learning and trying to find my true self as well. That is a really cool tattoo. But, probably not the safest thing to be doing when your blood won't clot. ;)
  • Topic Author
13 years 5 months ago #24439 by
i know its not the best thing but at times you have to take a risk or whats life about. and in the beginning all i see is just a waiting game until the platelets go back down to even talk treatment plan. i can't get have my spleen removed because I've been immune compromised the last 28 years the steroids will damage my liver worse then it is. so i',m enjoying life appointment by appointment but without to but i am selecting safe things no more contact sports suck
13 years 5 months ago - 13 years 5 months ago #24442 by
We moved to Tokyo a couple months after my diagnosis with me on 60mg of prednisone - knew I'd have a hematologist once there but didn't know when or who or where. Life is to live as fully and best as one can.

I'd get a tattoo - I want a tattoo - but I know I would be the one who would have an allergic reaction to the ink, so I am inkless. Yours is good looking.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 5 months ago #24467 by Sandi
Replied by Sandi on topic Re: The new me since diagnosed 1/11
Hate to admit it because it's SO not me, but I got one about 2 1/2 years ago. I always hated tattoos. It's high on my upper arm so it's always covered at work. It only shows when I am at home with a tank top or on the beach, then I don't care. It's a sea horse. A real one, not a cartoon or a dragon. That would have been tacky.
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13 years 5 months ago #24518 by damanning71
Replied by damanning71 on topic Re: The new me since diagnosed 1/11
I have a few tattoos, Im not proud nor ashamed of them. But if I had it to do over again I think I would choose to remain ink-free.