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Newly DIagnosed and On Promacta-

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14 years 4 weeks ago #18776 by jillenid
Newly DIagnosed and On Promacta- was created by jillenid
Anyone have experience with Promacta. I am on 60mg Prednisone and 50mg Promacta

First week on Promacta, my legs blew up so much, I couldn't walk. Now I still have some swelling but I can walk.

Went into emergency room in AUgust with a count of 1, got platelet transfusions, IVIG, IV prednisone and left after two days with a count of 157. Ten days later, count was back to 14, put back in hospital.
Now on Promacta which has brought the level back to 186 after 10 days.

Anyone have experience with this treatment?.
  • server
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  • newcreationchangingdaily
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14 years 4 weeks ago #18811 by server
Replied by server on topic Re: Newly DIagnosed and On Promacta-
Welcome jillenid. I'm currently on Promacta, 50mg. I never have heard about the swollen legs from Promacta. Is that the only meds you were on at the time it happened? I don't have any side effects from the Promacta, thankfully! It took my counts up to a "normal" number for a bit then they slid back down to 15, increased the dose which brought them back up to 59 but was starting to feel kinda crapy so doc said to lower the dose again. I don't think the crappy feeling was from the Promacta but I'm good with lowering the dose! Currently at 46, good with that! I think the crappy feeling was from stress. Ugh. I never used to believe in stress, but I'm starting to feel different!
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 3 weeks ago #18835 by Sandi
Replied by Sandi on topic Re: Newly DIagnosed and On Promacta-
Prednisone can cause the leg swelling - it sure happened to me.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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