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What to Expect from Rituxan

  • mstrux
  • Topic Author
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  • I was diagnosed with ITP at the age of 22 with a count of 6500. I fully recovered and was told it was a one time thing. 13 years later, it returned with a count of 19k. I have been stable for 6 years after 2 rounds of Rituxan.
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14 years 1 month ago #18097 by mstrux
What to Expect from Rituxan was created by mstrux
Hello! I have my first infusion on Tuesday and I have no idea what to expect. I have avoided reading too much online because of the scare factor, and all my hema tells me is that it's no big deal.

Can I eat beforehand? Should I expect to be 100% normal the rest of the day and days following? I get my daughter on Wednesday from my ex-husband and I'm just wondering if I'll be back to normal.

I've read on here that most people seem to be fine. I'm mostly worried about that day and the following.

Any thoughts would be greatly appreciated!

Thank you,

Meghan
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14 years 1 month ago #18098 by eklein
Replied by eklein on topic Re: What to Expect from Rituxan
You can eat before, and/or bring food with you. It's a long time to go without food!
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
  • mstrux
  • Topic Author
  • Offline
  • I was diagnosed with ITP at the age of 22 with a count of 6500. I fully recovered and was told it was a one time thing. 13 years later, it returned with a count of 19k. I have been stable for 6 years after 2 rounds of Rituxan.
More
14 years 1 month ago #18099 by mstrux
Replied by mstrux on topic Re: What to Expect from Rituxan
Thank you!!!!
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14 years 1 month ago #18102 by steve
Replied by steve on topic Re: What to Expect from Rituxan
Hello I'm new to this.
I start my fist treatment in 3 weeks.
I have many questions about this also.
Right now I just want to say good luck and and I hope it works for you.
  • mstrux
  • Topic Author
  • Offline
  • I was diagnosed with ITP at the age of 22 with a count of 6500. I fully recovered and was told it was a one time thing. 13 years later, it returned with a count of 19k. I have been stable for 6 years after 2 rounds of Rituxan.
More
14 years 1 month ago #18107 by mstrux
Replied by mstrux on topic Re: What to Expect from Rituxan
I'll let you know how it goes, Steve! I'm quite nervous but also very hopeful :D
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 1 month ago #18108 by Sandi
Replied by Sandi on topic Re: What to Expect from Rituxan
Rituxan for me was pretty uneventful. I slept through the infusions because of the pre-meds (most people will receive Benedryl, Tylenol and possibly Solumedrol). I was a little groggy that night, but fine for work the next day. I actually felt great the following day, probably because of the Solumed.

For some reason, I wasn't afraid of the treatments. I trusted that I was in good hands. The infusion is started slowly, and sped up if no reactions occur. The nurses monitor people closely, taking blood pressure and pulse frequently. I'd have to say that it really was no big deal....just a boring day.

Good luck to all of you.
  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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14 years 1 month ago #18111 by dru
Replied by dru on topic Re: What to Expect from Rituxan
Meghan,
My doctor gives me benedryl and hydrocortisone. Because of that I am groggy and need someone to drive me home. I'm tired that night but okay the next day. If you have any reaction, they will slow the drip down. You should bring something to eat and something to read or listen to.
  • mstrux
  • Topic Author
  • Offline
  • I was diagnosed with ITP at the age of 22 with a count of 6500. I fully recovered and was told it was a one time thing. 13 years later, it returned with a count of 19k. I have been stable for 6 years after 2 rounds of Rituxan.
More
14 years 1 month ago #18118 by mstrux
Replied by mstrux on topic Re: What to Expect from Rituxan
Thank you so much guys. I tend to be pretty adaptable and not too much of a worry wart, but I just had no idea what to expect. I have no allergies to anything so I'm hopeful I'll sail through the treatments. My mom is going to drop me off and pick me up (probably sit there the whole time knowing her) so I'll be in good hands. My boyfriend is leaving work a little early in case I need him at home. I am lucky to have a great support system!!

I can handle anything if I know what to expect. It's the not knowing that makes me crazy!!! I feel much better now :)
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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