Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

New to this many questions

More
14 years 2 months ago #17281 by Debby
New to this many questions was created by Debby
My mother who is 86 has Alzheimers but also sometime ago was diagnosed with myeloproliferative disease. Her platelet count hovers around 36. I do not plan on giving her treatment because of the Alzheimers, age ext. She sees a hemologist every 3 months but he's not great at explaining mainly because I'm not going to treat her. With the Alzheimers she is non communitive can't tell me if she's in pain. She resides in a nursing home. She has lost alot of weight. Can anyone tell me what to expect? any web sites that would be helpful? I've been thru alot this past year lost my Dad (heart failure) my sister 2 months ago to a rare renal cancer. I just don't want her to suffer and she can't tell me if she is. Thanks
More
14 years 2 months ago #17299 by milly
Replied by milly on topic Re: New to this many questions
Hi Debby,
I think your question here is if having low platelets would be causing your mother to be in pain,please correct me if I am wrong.
I have had platelet counts of 2000 and felt no effects, no pain no tiredness but this is just me, I have seen others that can tell if their platelets are low by how they feel, but I never can tell as I feel no different at normal counts or low counts.
I hope this helps you sure have had some big battles over the last twelve months, good wishes sent your way.
There is no practice run in life.
More
14 years 2 months ago #17303 by eklein
Replied by eklein on topic Re: New to this many questions
Hi Debby,
Low platelets by themselves don't cause pain. Some people have fatigue and other symptoms that are usually due to a related disease but not the platelet count alone.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
14 years 2 months ago #17304 by
Replied by on topic Re: New to this many questions
Whether she is in discomfort because of the myeloproliferative disease that I can't answer.

Is her weight loss related to the disease or Alzheimers?

What I would like to address is the hematologist - to me it seems like he is blowing you off because of your mother's age. He is her doctor, you [or medicare or medicaid] are paying him - and he should be explaining everything to you, he should be earning his fee.

Debby please accept my condolences on the loss of your father and sister, I am sorry. And now your mother's diagnosis - you have a lot on your plate.
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use