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I missed y'all but not real happy to be back LOL

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14 years 3 months ago #16737 by Tippy
I missed y'all but not real happy to be back LOL was created by Tippy
I used to visit quite a bit, and received very useful feedback- Thanks to Audi, Sandi and all the others! I used to have terrible bleeding symptoms with my flareups-ugh. Even a mosquito bite would have me running for the bandages to stop the bleeding. Then my count went all the way up to 75 - 95- yay.
but now I've got solid petechia all over my legs from my knees down- but no bleeding. What do you think?? Dr is already talking spleenectomy and that aint gonna happen!
14 years 3 months ago - 14 years 3 months ago #16744 by
Replied by on topic Re: I missed y'all but not real happy to be back LOL
Isn't petechia bleeding under the skin? What is your count?
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 3 months ago #16746 by Sandi
Replied by Sandi on topic Re: I missed y'all but not real happy to be back LOL
Hello - sorry you are back but nice to see you again. What did you treat with before?
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14 years 3 months ago #16768 by Tippy
Replied by Tippy on topic Re: I missed y'all but not real happy to be back LOL
Good News! Count is 110! WOW! but bad news is, they don't know what is going on w/ all this petechia- found a liver problem, etc etc. Going to hema and gastro to get this straightened out. Good Luck to all and God Bless!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 3 months ago #16793 by Sandi
Replied by Sandi on topic Re: I missed y'all but not real happy to be back LOL
Let us know!
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14 years 3 months ago - 14 years 3 months ago #16814 by Lindy
Replied by Lindy on topic Re: I missed y'all but not real happy to be back LOL
110 & with petechia:huh:

I have unexplained bruising at 90.
Hema don't think is due to low platelet, so I was screened for von Willebrand.
Came back negative.
So I am back to square one of wait & watch.
All the uncertainty.:(

Good luck for your visit to the hema, Tippy.
Hope it get straighten out.
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14 years 3 months ago #16876 by Tippy
Replied by Tippy on topic Re: I missed y'all but not real happy to be back LOL
Thank you all for your kind words.
I can usually tell when my count is low so that 110 was no surprse to me.
Except that I've never had one that high before.
I have an appt tomorrow w/ the gastro dr
but can't get into the hema until.. Aug 17<??
So much for the "Stat" designation. LOL
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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