Platelet Disorder Support Association

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!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

New here and saying hello

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14 years 5 months ago #15482 by lilynavasmom
New here and saying hello was created by lilynavasmom
Hi, my name is Rita. I'm 33 yrs old and I am newly diagnosed with IPT. I am so glad I found this forum. My hematologist has been very imformative but it helps so much to read the stories of real life people dealing with the same problems I am having. This seems like a great group of people!
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14 years 5 months ago #15484 by SteveC
Replied by SteveC on topic Re: New here and saying hello
Welcome Rita, glad you found us, sorry you need us! Yes there's an amazing group of people here and an equally amazing amount of experience and knowledge to share. Ask anything and I'll bet someone here has some experience and knowledge to share. You've found an extended family to share your ITP concerns, questions and anxieties with - we've been there and understand so don't fear asking anything.

You're correct about sharing. It does surely help to realize you're not alone with this disorder. Post often, post anything, share with others - we're all at various stages of ITP from days, weeks, years.

See you around - so to speak :laugh:
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C
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14 years 5 months ago #15491 by Dean
Replied by Dean on topic Re: New here and saying hello
Welcome. Glad you found this fourm. This is definatly a great place to talk about ITP issues. Knowing you are not alone really helps as does sharing your questions, concerns,experience with ITP.
So do not be affraid to share.
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14 years 5 months ago #15495 by milly
Replied by milly on topic Re: New here and saying hello
Welcome Rita, I have only been here about 7 or 8 months but you will find that the people on here are the best, there is always someone available to help no matter what time of day you have concerns.
Feel comfortable to let us know your story and any worries you may have, believe me when I say that there is a huge knowledge base and the best support group on this board. I have learnt more here than I could have from ant Dr.
There is no practice run in life.
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14 years 5 months ago #15498 by specialk16
Replied by specialk16 on topic Re: New here and saying hello
Hi Rita,

Welcome to the site... I have only been on here for about a month or so and these people are fabulous. We all have a common ground which helps because most of the time people dont understand what we are dealing with. Its nice to be able to talk it out and get more info from those that are experience similar things with their bodies.

Have a great day!!!
Kasha
MCTD (Lupus/Raynauds), Sjogrens, ITP
Plaquenil 400 mgs
Prednisone 10 mgs
Imuran 50 mgs
Rituxan 2005 and 2008 (can't take anymore, body rejected it)
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14 years 5 months ago #15503 by lilynavasmom
Replied by lilynavasmom on topic Re: New here and saying hello
Thank you for your kind welcomes! I was just officially diagnosed this week. It is kind of scary but after reading on here I feel more comfortable that things will be ok :)
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14 years 5 months ago #15507 by specialk16
Replied by specialk16 on topic Re: New here and saying hello
Yep, things will be okay. you just have to be an advocate of your own health and stay on top of things... you will be just fine!!!!!
Kasha
MCTD (Lupus/Raynauds), Sjogrens, ITP
Plaquenil 400 mgs
Prednisone 10 mgs
Imuran 50 mgs
Rituxan 2005 and 2008 (can't take anymore, body rejected it)
More
14 years 5 months ago #15563 by Dean
Replied by Dean on topic Re: New here and saying hello
Yes, it will be OK. It is scary at first but it does get easier.
It will be a rollercoaster ride but the ride does get smoother. Post your questions/concerns as it really helps talking to others that have been/are there.
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14 years 4 months ago #15567 by SteveC
Replied by SteveC on topic Re: New here and saying hello
Double agree with Dean, ITP is a roller coaster of emotions from anxiety to relief but my experience suggests it becomes a kiddie coaster after a while. You still have the ups/downs but not as big and you start thinking "I can handle this - no big deal!"
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C
More
14 years 4 months ago #15836 by DeeDee Marie
Replied by DeeDee Marie on topic Re: New here and saying hello
Hi Rita,
We're all here to share our stories. It has been a roller coaster of emotions from anxiety just like Steve mentioned. It does help to share your thoughts and get them out in the open. A lot of people outside of the forum do not always understand what we are going through. Good luck to you.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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