Platelet Disorder Support Association

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1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
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Privacy Concerns

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13 years 3 months ago #22185 by TerryOnTheMend
Privacy Concerns was created by TerryOnTheMend
Do people need to be concerned about privacy on this site? There have been a lot of stories in the news on how prospective employers, insurance companies, or, I imagine anyone who is a "computer wiz", extracting personal identifying information off of websites like this. This website, and ones like it are a great source of information and support to people. Please tell me I don't need to be concerned . . .

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13 years 3 months ago #22186 by eklein
Replied by eklein on topic Re: Privacy Concerns
I think you do need to be concerned. I know if I google myself my postings here turn up.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 3 months ago #22187 by Sandi
Replied by Sandi on topic Re: Privacy Concerns
Terry - anything on the Internet is free game to the world. No one could get your personal info like social security number, etc., because you don't post that here. But anything you say is public.

This is one reason I discourage people from posting private e-mail addresses and any other really personal information such as place of employment or living locations.

I hope that answered your question.

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
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Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


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