Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

counts today

More
14 years 10 months ago #9522 by lucidawn
counts today was created by lucidawn
He dropped to 123k...still pretty good counts though. I thought he might due to the physical trama of the root canal. He's getting 2mcg's per kilo again.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
More
14 years 10 months ago #9543 by tacmom
Replied by tacmom on topic Re:counts today
Glad to see that his counts are still up there and he got through his root canal ok! This is flu season so I expect to see some drops every now and then in our kids but hope that they maintain safe counts throughout the winter. This is the first time since ITP dianosis that Caitlin has been over 100 in the Winter, even while on Nplate. (This is her 3rd winter with ITP and Nplate.). I still think Rituximab has a factor in Timothy & Caitlin's success with this drug and i hope it continues for a long, long time!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
More
14 years 10 months ago #9645 by lucidawn
Replied by lucidawn on topic Re:counts today
I'm happy Caitlin is still doing well with Nplate. I agree about the Rituxan, and Tim has had two big colds in the last month and he seems to be VERY tired this week. He comes home from school and goes to sleep for the night. I'm hoping its just the colds and not a drop. We'll see Friday, but he's probably fine.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
Moderators: jaycharness
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use