Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Hello again and rollercoasters!

More
14 years 11 months ago #9443 by arnott
Hello again and rollercoasters! was created by arnott
Hello again! I'm Liam's mom and he's had chronic itp since he was 9 1/2 -- for nearly 5 years (lucky us). He's been managing pretty well on dexamethasone but he's slipped down recently to between 50 and 80k. He wants to go to Universal Studios this week with a friend and I told him I would check to see if anybody knows the minimum for roller coaster riding? I swear I used to know this but have forgotten. Of course, if you ask me, he should have 5 million platelets before he gets out of bed in the morning but that's just mom worrying. What have your doctors told you?
Thanks, Nan
More
14 years 11 months ago #9447 by alisonp
Replied by alisonp on topic Re:Hello again and rollercoasters!
Hi Nan

I've asked this question myself of several doctors on behalf of my asymptomatic 12 year old son! It goes without saying that I've had several different answers ranging up to about 80K, but the best (lowest) was 30K from a really experienced haematologist at Manchester Childrens Hospital. We got a count the day before we were planning to go, and, from memory, I think it was 41K. All was fine. Hope Liam has a great time.

Ali :)
More
14 years 11 months ago #9462 by juliannesmom
Replied by juliannesmom on topic Re:Hello again and rollercoasters!
Our hematologist says 80K for ITP kids to ride rollercoasters and other spinny rides.
Norma
More
14 years 10 months ago #9600 by jaycharness
Replied by jaycharness on topic Re:Hello again and rollercoasters!
As I always say, if you ask 4 different hematologist about ITP, you will get 10 different answers. That is not a knock on Doctors, it is just what ITP is. In our case, our Doctor has less worries about bleeding problems at a count over 50k, but is very comfortable at 100k. Just another Doctor's opinion.

Good Luck,

JJ
Moderators: jaycharness
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use