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Tim

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15 years 3 months ago #9051 by lucidawn
Tim was created by lucidawn
He's 145k today...1mcg/kg again. We'll see how long he holds this count at 1 mc. Seems to be doing pretty good with it.

Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 3 months ago #9053 by Angel85
Replied by Angel85 on topic Re: Tim
Wow, thats awsome, glad to hear he is doing so well

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15 years 3 months ago #9065 by lucidawn
Replied by lucidawn on topic Re:Tim
Yes, and it turns out I had miscalculated the timing of the shot. It had been two weeks since the last shot and he still held out. I'm hoping for a remission in the near future. Even a partial remission would be great.

Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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