!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Camp Charley for chronic ITP children...

More
15 years 8 months ago #4857 by fordnash
This years Camp Charley is being held Oct. 22-24. The camp is in Scottsville, KY at the Center for Courageous Kids.

There are still a few slots open for ITP families with chronic ITP children.

For further information please contact Pamela Ford, fordnash@gmail.com

Pamela Ford ~
Parent of 10 year old Jaxen Ford ~ diagnosed at age 4. Active on N~Plate's pediatric clinical trial after failing all other treatments including splenectomy.

Please Log in or Create an account to join the conversation.

More
15 years 8 months ago #4859 by lucidawn
Replied by lucidawn on topic Re:Camp Charley for chronic ITP children...
I thought this said, "At the Center for CONTAGIOUS Kids." I was like... :ohmy:

Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

Please Log in or Create an account to join the conversation.

Moderators: jaycharness

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.