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ITP relapse after 4 years

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2 years 10 months ago #73027 by th8899
ITP relapse after 4 years was created by th8899
After 4 years of remission (100k+ without any med), my now 16-year-old son woke up this morning with petechiae all over his body. We rushed to ER, and the platelet was down to 5k. It is so frustrating. We all thought this was behind us now. ER doctor consulted his hematologist and put him on 60mg prednisone until our hematologist could see us sometime this week. Prednisone actually never worked last time, hopefully, it could do its wonder this time. I'd like to hear about any experience of relapse. Is it will be more difficult or easier to deal with?  Will the same treatment work again? Last time, Promacta put him into remission. Thanks

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2 years 10 months ago #73028 by MelA
Replied by MelA on topic ITP relapse after 4 years
th I would post this up in the adult section, general or treatment section - more people read there then here in the children's section.
Sorry your son's count hit the gutter - hopefully he'll be able to see his hematologist soon!!
Although I was never in the normal range after being on prednisone my count did hit the gutter after a tetanus booster, 1 WinRho IV got me back on track.   Not sure if WinRho is used as a treatment any more.

I  hope you all get good news this week!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: th8899

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.