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Timothy 68k

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15 years 9 months ago #3078 by lucidawn
Timothy 68k was created by lucidawn
He had alot of bruising this week, so I figure it was due to his counts increasing. He gets petechiae if he drops or goes up...any change.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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15 years 9 months ago #3079 by alisonp
Replied by alisonp on topic Re:Timothy 68k
Thats good to see! N-Plate seems to have a lot of variability week by week. I would've just expected a dose to produce a reasonably predictable result, but it clearly doesn't. Is Tim still tolerating it ok?

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15 years 9 months ago #3085 by lucidawn
Replied by lucidawn on topic Re:Timothy 68k
Ali,
Yeah, I think that his body probably does what it can to destroy what it has identified as a harmful and foreign substance...its own platelets! So it tries to compensate, I guess. He is tolerating it, but he said today that it makes him feel like the promacta made him feel.
I hope that Dougie's count is up, and I hope your other son gets into the ENT sooner than you think. Doesn't sound like your ENT is very sharp. Can you see another one?
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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Platelet Disorder Support Association

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.