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Signs of remission

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7 years 5 months ago #64227 by nellj21
Signs of remission was created by nellj21
Hi All,

My daughter is about to turn 10 and is on 8 months of her ITP diagnosis. As you all know and experienced, it's been a rollercoaster ride. I am wondering what is everyone's experience in acute ITP and it's remission. If you've experienced this, what were your physical symptoms before you were considered in remission? I am looking or literature that describe this, and have not found any. Thank you for your time

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 5 months ago #64232 by Sandi
Replied by Sandi on topic Signs of remission
Nell - a person is considered to be in remission when they can maintain a normal count without treatment. Symptoms don't have anything to do with it. A person can also have a partial remission, which is when counts stay above treatment range without treatment (50k or so).

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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7 years 5 months ago #64244 by mrsb04
Replied by mrsb04 on topic Signs of remission
As a nurse I would describe complete remission as when the count is normal without any treatment and partial remission as a count remaining stable whilst taking a 'maintenance' therapy.
e.g. If I manage to get completely off steroids stay on 50mg of Eltrombopag daily and maintain my current count.

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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7 years 5 months ago #64246 by Hal9000
Replied by Hal9000 on topic Signs of remission
mrsb, is that the way they define partial remissions for kidney issues / kidney transplants, or ?
ITP Types and Treatments by HAL

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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7 years 5 months ago - 7 years 5 months ago #64250 by mrsb04
Replied by mrsb04 on topic Signs of remission
It's my understanding of the terms and applies to any medical condition

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Platelet Disorder Support Association

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.