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Timothy at 30k tonight

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16 years 1 week ago #3 by lucidawn
Timothy at 30k tonight was created by lucidawn
I know it is a shortlived IVIg response, but at least we know his bone marrow is functioning. This is good news. It will be interesting to see what the plan will be next. Typically this will only last a week or less.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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  • Angel85
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  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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16 years 1 week ago #4 by Angel85
Replied by Angel85 on topic Re: Timothy at 30k tonight
Good to hear they are at 30, he is at least not in the danger zone at the moment, and good to hear his bone marrow is still finctioning.

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16 years 1 week ago #5 by lucidawn
Replied by lucidawn on topic Re:Timothy at 30k tonight
Thanks....this forum/site is missing one important detail. Signatures. I can't find any place to set up a signature.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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16 years 1 week ago #6 by dots
Replied by dots on topic Re:Timothy at 30k tonight
Good point about the sigs. We should let them know -- I bet they can add it somehow.

Look for a PM either here or at the other forum regarding my username.

This is really good news about Tim.

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16 years 1 week ago #7 by shelly.k
Replied by shelly.k on topic Re:Timothy at 30k tonight
Happy to hear his count went up. Hopefully, it will continue to climb - about time he caught a break!!

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16 years 1 week ago #8 by lucidawn
Replied by lucidawn on topic Re:Timothy at 30k tonight
Well, the rise in counts is what he usually gets from IVIg,the second dose, but we don't usually take a cbc after the second dose. It doesn't last more than a few days, though. its only an indication that his bone marrow is 'functioning', but its nt really an indication of remission or that he is on the rise, unfortunately.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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16 years 1 week ago #9 by alisonp
Replied by alisonp on topic Re:Timothy at 30k tonight
Its still good news for those of us who watch for posts about Tim though - I thought he would never get into double figures! Hope he is enjoying it while it lasts.

Ali

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