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Good news :-)

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9 years 11 months ago #54150 by alisonp
Good news :-) was created by alisonp
Dougie's count a fortnight ago was an amazing 85! Even he said he couldn't quite believe it :laugh:

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 11 months ago #54153 by Sandi
Replied by Sandi on topic Good news :-)
Alison - that's great! Is he still taking the acne med?

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9 years 11 months ago #54159 by alisonp
Replied by alisonp on topic Good news :-)
Yes, we were joking that it should be tested as a new ITP cure - Dougie hasn't had counts anything like that for years ;)

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 11 months ago #54160 by Sandi
Replied by Sandi on topic Good news :-)
Is it an antibiotic? Sometimes counts do go up with antibiotics.

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9 years 11 months ago - 9 years 11 months ago #54167 by alisonp
Replied by alisonp on topic Good news :-)
Its active ingredient is isotretinoin (sp?) which is a vitamin A derivative

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9 years 11 months ago #54171 by Rob16
Replied by Rob16 on topic Good news :-)
Accutane (isotretinoin) is known to cause thrombocytopenia, reversibly, by suppressing bone marrow production. However, cases of thrombocytosis (the opposite of thrombocytopenia) have also been reported.

FactMed.com lists the likelihood of thrombocytopenia with Accutane at 1.087%, and thrombocytosis at .047%.

You might want to let Dougie pick some lottery numbers for you!

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9 years 11 months ago #54177 by alisonp
Replied by alisonp on topic Good news :-)
Ha! Yes I should do! :P

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9 years 9 months ago #55052 by alisonp
Replied by alisonp on topic Good news :-)
Just thought I would update. Dougie hasn't had another test recently but he's still looking good so we are assuming adequate platelets. Today he ran his first ever half marathon - came in just under two hours. ITP does not necessarily have to change your dreams :-)

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 9 months ago #55054 by Sandi
Replied by Sandi on topic Good news :-)
That's great, Alison! Congrats to Doug! :laugh:

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