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Rituximab

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11 years 6 months ago #42635 by acook
Rituximab was created by acook
My son has was diagnosed in May. He is 10 years old. The IVIG is not working anymore and neither are the steroids. The doctors want to try a drug called Rituximab. I am leery. Had anybody had experience with this drug?

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11 years 6 months ago #42672 by Tcammauf
Replied by Tcammauf on topic Rituximab
My daughter is almost 12 and was diagnosed in April. She also does not respond to IVIG or Prednisone. Just last week her count was two again. The doctor gave us the option to either do Rituximab or Dapsone (which is a pill taken daily). We chose Dapsone for now. If it doesn't work we'll be moving on to Rituximab. Sorry I don't have an experience to share but just wanted you to know your son is not alone.......
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11 years 6 months ago #42675 by arwen
Replied by arwen on topic Rituximab
Hello! My son is now three and he has had ITP for 1.5 years. He did rituximab when he was two. It wasn't as bad as I thought it would be. He had a little nausea and we kept him away from large groups of people for about six months afterwards. Unfortunately it did not work for him but I know many people have a good response to it. He is only weekly nplate injections now and is responding very well! Best wishes for you and yes you are not alone.
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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.