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I NEED to enjoy this

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12 years 6 months ago #31376 by crystal lee
I NEED to enjoy this was created by crystal lee
So Bryan's count Monday was 70..Thrilled yes! I can't adjust. I need to be enjoying this, letting him play without the constant no's and fear..BUT I am doing a very poor job at that. I just keep thinking what if he has dropped? I went through all 29 pages in this section and I didn't see one child that bounced this far up without treatment and stay up..I may of missed it, I didn't read every single post but I couldn't find one!

I KNOW just enjoy today, but I am so afraid I am going to give him "too much" freedom and he be dropping

Mad at myself because I know I need to be enjoying this, can tell myself that over and over..but I can't DO IT...What is wrong with me??
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12 years 6 months ago #31378 by alisonp
Replied by alisonp on topic I NEED to enjoy this
First of all, whooppee! How did I miss your previous post?

About six months into ITP, Dougie went from 3 to 120 (ish) in a fortnight. Like you, I had thought that he was looking good. About three weeks after he was down to 30 something which was sort of disappointing, but he stayed there or thereabouts for a good six months or so after that. Then something happened and he bumped back down again. That was just what happened for him, and Bryan might follow a different pattern entirely. It does happen.

There's nothing wrong with you - looking after them is a hard habit to break. I would try to treat him like he is ok until you know he isn't - you knew he was better this time and you will know when/if he is on his way back down again too. Above all, enjoy this time and let Bryan enjoy it too.

I am so happy for you both!

Ali :)
The following user(s) said Thank You: crystal lee
12 years 6 months ago #31394 by
Replied by on topic I NEED to enjoy this
Crystal,
My daughter Hannah was like that. After 6 months of living at counts btw 3k-10k, when I gave her the right homeopathic remedy for her, she went up to 411k in a few days and has stayed in the high 300's consistently since then--8 1/2 years ago now. To my knowledge, she has dropped only once. That was when she took a blow to the temple in an obstacle course and she got inflammation of the Trigeminal nerve. It's also known as the "suicide nerve" because 30% of succeeded will commit suicide because the pain is so intense and so unrelenting. This was an instance where I took her to the ER when I couldn't seem to find a homeopathic remedy to help. Fortunately, I found a very high potency of her usual remedy in my travel bag at the ER, that I'd been looking for earlier. It literally stopped all her pain within 3 minutes! But, since we were there, they did a CBC and her counts were 50k. No surprise, really, as it had put her body under so much stress.
But, the important thing is, they had her come back in 2 days later and after having one more dose of her remedy, her platelets had bounced right back to normal. Everyone's platelets-whether they have ITP or not--will have times when their platelets or other blood cells will fluctuate. Our bodies are dynamic organisms--not static. There is nothing dangerous about going up and down a bit as his body will roll with the punches of life. The body's ability to right itself, to come back to homeostasis, is what you want to see. As a young child he will definitely have some illnesses and accidents, and that is all well and good, as it is the main way that his immune system will grow strong.

Also, why do you say he had no treatment, when you were using homeopathy on him? According to you, it completely changed his behavior for the better, he was looking good physically, he had a big growth spurt, he healed very quickly even after a huge head bonk--and now his platelets are going up too! I do think the homeopathy was what has been helping him. Either that, or just a lot of spontaneous healing going on.

Anyway, if he can go up once, he can do it again. Important thing is to avoid drugs and toxins that can overwhelm his body's ability to break them down. I see exposure to these (even seemingly benign OTC drugs), to be the #1 reason forITP relapses, in my experience.)
There ARE many safe alternatives. I've managed to raise six kids, half of them adults, now, with never resorting to antibiotics except for one, when he got an overwhelming sepsis from a MRSA infection he contracted during an operation after an injury. My kids are clueless as to even what an OTC drug is--they know the Homeopathics work and work quick. Of course it's not the only way to treat things, but I've found it to be a good way. Just saying there are alternatives to drugs.

In regards to when do you stop worrying, I think that's pretty normal. Probably not until his counts are normal for at least 6 months. For me, anyway, that was the magic number. Maybe it was because that was when they released us from having to come in for counts unless we saw symptoms. Of course, you'll have it harder, I think, being that he's a boy, as there does seem to generally be a difference there in the level of activity and the degree to which they like to scare the pants off their moms! Just ask Dougie's mom...
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12 years 6 months ago #31396 by crystal lee
Replied by crystal lee on topic I NEED to enjoy this
Ok,yes I should of said without conventional treatment.
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12 years 6 months ago #31400 by firkins
Replied by firkins on topic I NEED to enjoy this
Hi -- Fabulous news! Yae! I'm with Ali and April all the way -- try to enjoy the day but don't be hard on yourself if you can't help watching over. This disease is a roller coaster ride for sure. I sometimes think it's the disease equivalent of "Groundhog Day" -- which is all about learning the very hard way important lessons about living in the moment. I hope you -- and Bryan -- enjoy this one. Best to you.

Firkins (mom of Zoe (15) and Mia (13). Mia has ITP. Diagnosed 3/2012.
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12 years 6 months ago #31429 by Brklyn
Replied by Brklyn on topic I NEED to enjoy this
I think it can be hard to "let loose" knowing all the possibilities of what can happen. But yes I think it is important to try and relax and enjoy the present. Hope it stays that way!
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