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Been here for a year...

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13 years 3 weeks ago #30032 by Brandi
Been here for a year... was created by Brandi
Well, we are two weeks short of the year anniversary of Ryan being diagnosed with ITP. In all honesty, I believed everyone when they said "oh - he'll be over it in no time!". I know... I know... there is no way to predict that sort of thing.

We go to see his hematologist tomorrow, and get a count. He hasn't had one since November and that was in the 60's. His last treatment was in July. And for those that have been here... you'll remember he used to need IVIG every 4 weeks. But today I noticed an increase in bruising, in odd areas. For the month of December, he hardly had a single bruise on him! January rolls around and bam -- it looks like he's heading downhill, fast.

I'm bummed. I really am. I mean, I know that ITP is something you can live with... this past year has proven that to me. But at the end of the day... that really doesn't make it all better. A little better? Yes... but not all better.

Okay, I needed to complain for a second. Moving forward, I will continue to be grateful for every count we get that isn't in the "treatment range", and grateful that ITP is not life threatening and he can live a pretty normal life.

And grateful that I found this site, found folks that understand what my family is going through... and what Ryan is going through.
- Brandi
Mom of 3 amazing boys (ages 10, 5/dx ITP 01/2012, and 9 months old)
The following user(s) said Thank You: firkins

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.