Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

HI! Still going well, 6 years after Rituxan

More
13 years 3 months ago #28336 by isaacsmom
HI! Still going well, 6 years after Rituxan was created by isaacsmom
I just wanted to come out and post a quick hi! My son, Isaac was diagnosed with ITP in Jan. of 2006 at the age of 3. He had Rituxan in Oct. 2006 (6 years ago, where did the time go???!) and has continued to be in remission since. We are super busy now that he is almost 10. He is able to participate in all sports, and plays baseball, basketball, and flag football. He earned his black belt in karate last year, just before his 9th birthday. He is also in Cub Scouts and enjoying his time in that. All in all, we are doing great!

I just wanted to say hi, and also to offer some hope to those who are where we were in 2006. I remember how tough it was for us. Isaac didn't respond to IVIG, WinRho and he had a very small response to prednisone. Our thoughts continue to be with those that are still struggling.
The following user(s) said Thank You: crystal lee

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 3 months ago #28357 by Sandi
Replied by Sandi on topic HI! Still going well, 6 years after Rituxan
Hello stranger! So glad you checked in and so happy that Isaac is doing so well!

Please Log in or Create an account to join the conversation.

More
13 years 3 months ago #28360 by isaacsmom
Replied by isaacsmom on topic HI! Still going well, 6 years after Rituxan
Hi Sandi! I know it has been a while... I just didn't realize how long it had been. :-) I guess that is a great thing!

Over the past several years we have traded in a hematologist for a neurologist, but all in all, not so bad. About 4 years ago he was diagnosed with Tourette's. That can be an annoyance at times, but he is such a good kid, that it usually isn't that big of a deal.

How are you doing? I see you retired! How exciting! How has your daughter been doing?

Please Log in or Create an account to join the conversation.

Moderators: jaycharness

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.