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What can I expect?

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13 years 1 month ago #27106 by philmays
What can I expect? was created by philmays
As commented earlier, we are new to this.

Saturday at 4AM he received his first dose of IVIg and was discharged later in the morning. His counts went from 11 to 25.

Last night Connor (29 months) was very "tired" and just layed in our laps and on the floor. He was not whining, but was tired. When we rubbed his back he said "ouch". Today is much of the same, except this AM he pointed to his head.

My question(s) is/are:

1. what side effects can we expect with IVIg?
2. Are these symptoms that go along with low platelet counts outside of therapy's?
3. Does this effect appetite?
4. What should I know that I have not asked...in general.

Thanks in advance.
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13 years 1 month ago #27121 by alisonp
Replied by alisonp on topic What can I expect?
Hi

My son's only had IVIg once, but your son sounds like he is probably suffering the side effects - bad headache, felt dehydrated, vomiting. It went away on day 4. IVIg only last about 2-3 weeks. As an indication, my sons counts were 175 after 1 week, 77 after 2 weeks, 32 after 3 weeks, 12 after 3 and a 1/2 weeks.

Most kids recover within 6 months. Limit activities to those that you can make safe and keep an eye out for bleeding (nosebleeds, blood in the poo or wee, blood blisters in the mouth, etc). If he has any bleeding, get medical attention. Its a scary diagnosis, but kids of your son's age "usually" recover quite quickly from ITP and it will hopefully be a thing of the past quite soon for him.


Good luck, Ali
The following user(s) said Thank You: philmays
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13 years 1 month ago #27123 by meador
Replied by meador on topic What can I expect?
our hops/dr said we should call if our child would develop a bad headache after the IVIg, they watch for acute meningitis and can offer relief for the headache as it is an extremely bad one.
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13 years 1 month ago #27139 by philmays
Replied by philmays on topic What can I expect?
We just had the count from the blood panel today and he was 354K :) we go back in two weeks. I fully expect a drop, but never expected such a great count today. His treatment was roughly 80 hours before today's count...I'll take any good news :)
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13 years 1 month ago #27142 by Brandi
Replied by Brandi on topic What can I expect?
That is great news!
- Brandi
Mom of 3 amazing boys (ages 10, 5/dx ITP 01/2012, and 9 months old)
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13 years 1 month ago #27150 by meador
Replied by meador on topic What can I expect?
wow, that is wonderful!
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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