Information needed

Hi,

My 5yr old son has itp for 5 weeks now & his platelets have always been between 2, 3 & 5. Today the doc said she would have expected to see them a bit higher but said we just have to wait & see. He is not getting treatment just blood tests every 2 weeks going forward. He has had no active bleeding either.

I am just interested to find out from parents with experience if I should be seeing them gradually go up or should we expect to sees big jump. I am worried that they are so low for this length so would like to know other parents experience with this.

Many Thanks

I was told it could go either way. A gradual increase or a big jump.

Thanks for your reply.

Your welcome. Sorry I didn't have a more definite answer. My 4 1/2 yr old has had ITP since January of this year, and we're still waiting to see what happens if/when it corrects itself.

I hope you see higher numbers soon!

Lmaher,
I'm wondering the same thing. I've been told it would be a gradual increase with no treatment but who knows. We too are waiting and watching and it is so very frustrating! My son has had ITP that we know of since February of this year. He was up to 54 2 weeks ago which is the highest it's been since diagnosis. School starts soon and we get bloodwork next week. Hoping and praying for at least a 70 or so! I hope your son improves soon!

I've been looking at posts on this forum for a couple of years, and I don't think there really is any pattern - I've seen kids go up slowly, quickly, or not at all, and kids whose counts bounce round like a yoyo. I think on the whole, any increase is good, and any increase that persists over a couple of counts is better! I hope your son recovers quickly.

We have been on this site for 3 1/2 years now, each kiddo with ITP is different, we all started out looking for some sort of a pattern and watching those counts soooooo closely. The good news is that most kiddo's recover within 6 months to a year. I truly hope that is the case for your kiddo. We have a plan with the school and they are aware of Kayla's ITP and will call me if she has any bleeding or an increase in petichia. Communication with the school is key, the nurse, teacher, specialists, and aides should be aware and able to adjust actiivities as needed depending on counts.
Good luck and Know you are not alone!!!!
Thinking lots of platelets for your kiddo
Krissy

Hi Everyone,

Thanks for all your comments & well wishes. It's great to get this information, it's given me a bit more patience. Fingers crossed we see improvements. Fingers crossed for ye too. X

Not a parent of a child with ITP, but have it myself. So, hope you do not mind me commenting. Sorry to hear your son is going through this. It is more than likely an Acute case of ITP at that age and he will recover on his own with no treatment. Basically monitor counts regularly and keep an eye out for symptoms, bruising, bleeding and Petechiae.
Fingers crossed!!