Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

IVIG or Rituximab?

More
13 years 3 months ago #26021 by Stoic
IVIG or Rituximab? was created by Stoic
Trying to figure out what one to go down? Any experience or thoughts on the choices. These are the 2 I have narrowed it down to.:unsure:
More
13 years 3 months ago #26022 by kfs
Replied by kfs on topic Re: IVIG or Rituximab?
We have tried both, my understanding is IVIG is the first course to try and then Rituxin. My son had two courses of IVIG two years apart, neither had results lasting more than a few days. He was nauseated and bad headache after each. He had rituxin 9 months ago, results were slow gradual and slow but he stayed above 165,000 for 8 months. June 11 platelets were 165,000, then June 22 we noticed suspicious bruising and they were 47,000, then on 7/2 30,000. We would have waited to see what would happen, but he had a camp scheduled this week so we did a pulse dose of Prednisone, 60mg for 5 days and yesterday they were 328,000. Not sure how long this will last but should get him through the week. Have you tried Whin Rho, did not help my son but others have had good results. Good luck, treatments work differently for each child, use your instinct.
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 3 months ago #26039 by Sandi
Replied by Sandi on topic Re: IVIG or Rituximab?
It depends on what you are looking for.

IVIG is known to be very temporary. It can last a few days or a few weeks. It's a fairly long, expensive infusion for a short term result.

Rituxan can give a remission if a person is responsive. It's more toxic than IVIG, but can last a year or more. You can ask for low dose...it's been shown to be just as effective as the standard, higher dose.
More
13 years 3 months ago #26041 by Stoic
Replied by Stoic on topic Re: IVIG or Rituximab?
Thank You!!!! What is Whin Ro????
More
13 years 3 months ago #26045 by eklein
Replied by eklein on topic Re: IVIG or Rituximab?
Look it up with the spelling WinRho. Also called anti-D.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
Moderators: jaycharness
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use